PARLIAMENTARY WRITTEN QUESTION
Heart Diseases: Health Education (1 November 2024)

As part of the 2023 England Rare Disease Action Plan, NHS England’s Genomics Education Programme has developed GeNotes, to increase the awareness of genetic and rare diseases amongst healthcare professionals. GeNotes puts information on genetic and rare diseases at the fingertips of healthcare professionals, including general practitioners. The GeNotes resource has a cardiology speciality section and includes several pages on cardiomyopathies. Further information on GeNotes more generally and about the cardiology speciality section specifically is available, respectively, at the following two links:

https://www.genomicseducation.hee.nhs.uk/genotes/

https://www.genomicseducation.hee.nhs.uk/genotes/cardiology/

Furthermore, cardiac networks of care, established locally to ensure joined up patient pathways, provide support in raising awareness of inherited cardiac conditions, including cardiomyopathy, across healthcare providers, in accordance with the services specification for inherited cardiac conditions, which is available at the following link:

https://www.england.nhs.uk/publication/cardiology-inherited-cardiac-conditions-all-ages/