PARLIAMENTARY WRITTEN QUESTION
Chronic Illnesses: Children (5 January 2018)

Patient outcome data collections currently include the National Clinical Audits on Diabetes and Epilepsy, which are delivered by the Royal College of Paediatric and Child Health and managed by the Healthcare Quality Improvement Partnership (HQIP) on behalf of NHS England. There is also a Child Health Clinical Outcome Review Programme, which is run by the National Confidential Enquiry into Patient Outcome and Death, also managed by HQIP on behalf of NHS England. The Review Programme is currently examining two topics: chronic neurodisability; and, adolescent mental health.

Audit programmes are routinely reviewed with new audits being commissioned as and when a need is identified. More information about HQIP audits and Review Programme can be found at the following link:

www.hqip.org.uk

There is also a range of service and population outcome data, available at national, and in many cases, local level, relevant to the care and support of children with long term conditions, as well as the prevention of conditions. For example, the NHS Outcomes framework indicators 1.6 ii Five year survival from all cancers in children and 2.3ii Unplanned hospitalisation for asthma, diabetes and epilepsy in under 19s; and the Public Health Outcomes Framework indicator 2.06 Child excess weight in 4-5 and 10-11 year olds. The latest versions of the frameworks can be found at the following links (the 2016/17 version of the NHS Outcomes framework remains in use). The Frameworks are routinely reviewed and revised as appropriate.

www.gov.uk/government/publications/nhs-outcomes-framework-2016-to-2017

www.gov.uk/government/publications/public-health-outcomes-framework-2016-to-2019

Additional data may also be collected by local services to improve patient care, where such a need is identified.