PARLIAMENTARY WRITTEN QUESTION
(16 September 2025)

To ask the Secretary of State for Health and Social Care, if he will hold discussions with the National Institute for Health and Care Excellence on the development of guidelines for PANS and PANDAS.

Asked by:
Cameron Thomas (Independent)

Decisions on topics for new or updated guidance from the National Institute for Health and Care Excellence (NICE) are considered through an established NICE prioritisation process with decisions overseen by a prioritisation board, chaired by NICE’s Chief Medical Officer.

NICE’s prioritisation board considered the development of guidance on paediatric acute-onset neuropsychiatric syndrome and paediatric autoimmune neuropsychiatric disorder associated with streptococcus in November 2024 and concluded that there is insufficient evidence in this area to develop useful guidance.

Answered by:
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