PARLIAMENTARY WRITTEN QUESTION
(11 September 2025)

To ask the Secretary of State for Health and Social Care, if he will make it his policy for NHS England to create a dedicated registry for people with (a) type 1 diabetes and (b) Type 1 Diabetes and Eating Disorders (T1DE) to improve (i) prevalence data and (ii) patient support.

Asked by:
Manuela Perteghella (Liberal Democrat)

The National Diabetes Audit is the primary mechanism for collecting data in England on the care and outcomes of people living with diabetes, helping to inform healthcare practice and policy.

The National Diabetes Audit could serve as a registry for type 1 disordered eating (T1DE) in the future. An agreed definition of T1DE supported by the National Institute for Health and Care Excellence (NICE) will be important to enable diagnosis, data recording and establishing data collection processes.

NHS England works closely with NICE to understand emerging areas for consideration in national guidance and has committed to share the current pilot site evaluation outcomes, when available, with NICE to ensure findings are considered in the development of future guidance.

Answered by:
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