PARLIAMENTARY WRITTEN QUESTION
(16 July 2025)

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to ensure that highly specialised national services for patients with (a) rare diseases and (b) complex surgical needs will continue to be (i) commissioned and (ii) managed at a national level following the abolition of NHS England.

Asked by:
Ben Coleman (Labour)

Working under the ‘UK Rare Diseases Framework’, the Government is committed to improving the lives of those living with rare diseases.

Ministers and senior DHSC officials are working with the new executive team at the top of NHS England, led by Sir Jim Mackey, to lead the formation of a new joint centre. Whilst this transformation takes place, we will ensure that we continue to evaluate impacts of all kinds and will work collaboratively to put plans in place to ensure continuity of care and that there are no risks to patient safety.

Answered by:
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