PARLIAMENTARY WRITTEN QUESTION
(23 June 2025)

To ask the Secretary of State for Health and Social Care, what assessment he has made of the effectiveness of the NHS England Genomics Education Programme in improving healthcare professional awareness and understanding of (a) aplastic anaemia and (b) other rare diseases.

Asked by:
Sarah Bool (Conservative)

Working under the UK Rare Diseases Framework, the Government is committed to improving the lives of those living with rare diseases, such as aplastic anaemia.

NHS England’s flagship GeNotes resource, developed by NHS England's Genomics Education Programme, is aimed at healthcare professionals in order to continue their growth, and has more than 500 resources featured across nine specialties. Aplastic anaemia is not currently included in GeNotes. The Genomics Education Programme is also developing a range of training and educational resources on rare diseases, to include rare diseases in United Kingdom health professional education and training frameworks. Work continues to expand the programme’s coverage.

Answered by:
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