PARLIAMENTARY WRITTEN QUESTION
(30 May 2025)

To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure there is adequate infrastructure to offer access to treatment for people living with inherited cardiac conditions in the East of England.

Asked by:
Steve Barclay (Conservative)

NHS England has a published a national service specification for inherited cardiac conditions. This sets out what guidance should be followed, and the services provided to support diagnosis and treatment of patients with previously undiagnosed cardiac disease. This also includes support to families requiring follow up due to a death from this cause. The specification is available at the following link:

https://www.england.nhs.uk/wp-content/uploads/2017/11/cardiology-inherited-cardiac-conditions.pdf

The national service specification also includes a requirement for specialised inherited cardiac conditions services to investigate suspected cases.

NHS England is currently reviewing this service specification working with a broad range of stakeholders including NHS clinical experts, the Association of Inherited Cardiac Conditions, Cardiomyopathy UK, Heart Valve Voice and the British Heart Foundation.

There are plans for all referrals to the Inherited Cardiac Conditions service in Cambridgeshire to go to Cambridge University Hospitals NHS Foundation Trust and Royal Papworth Hospital. This will operate a specialist centre for Cambridgeshire, with a multi-disciplinary team already in place to support this.

Answered by:
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