PARLIAMENTARY WRITTEN QUESTION
(10 March 2025)
Question Asked
Asked by:
Monica Harding (Liberal Democrat)
Answer
Working under the UK Rare Diseases Framework, the Government is committed to improving the lives of those living with rare diseases, such as Huntington’s Disease.
Integrated care boards (ICBs) are responsible for working with their local communities to understand the needs of the local populations and make decisions about how best to commission services that meet those needs, including the treatment of Huntington’s Disease, in partnership with other local commissioners and organisations. Details on local clinical provisions are best answered by the ICB, in this case NHS Surrey Heartlands.
Answered by:
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