PARLIAMENTARY WRITTEN QUESTION
(16 December 2024)

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to raise (a) public and (b) professional awareness of (i) inflammatory bowel disease and (ii) other unseen disabilities in the context of access to (A) healthcare and (B) social support for people with those conditions.

Asked by:
Lisa Smart (Liberal Democrat)

NHS England’s Getting It Right First Time Programme on gastroenterology aims to reduce variations in care, increase early diagnosis and proactive management of Crohn’s disease and colitis, and increase access to inflammatory bowel disease (IBD) specialist nurses.

The National institute for Health and Care Excellence (NICE) has also produced a range of guidance on IBD, Crohn’s disease and colitis, to support early diagnosis and effective management of these conditions. It ensures that the care provided to people with IBD is based on the best available evidence. In the last two years, the NICE has recommended four new drugs for the treatment of moderate to severe Crohn’s disease and ulcerative colitis, including Upadacitinib, Risankizumab, Mirikizumab, and Etrasimod.

NHS England’s National Bladder and Bowel Health Project is delivering better care for people with IBD, with a focus on developing clinical pathways. NHS England commissions specialised colorectal services nationally to support the equity of access to high-quality treatment for patients with IBD requiring complex surgery. This work is supported within NHS England by the clinical leadership of the Specialised Colorectal Services Clinical Reference Group, which is made up of experts in surgery, medicine, radiology, pathology, and nursing, alongside patient and public voice representatives.

To raise awareness of IBD among general practitioners and other primary care staff, the Royal College of General Practitioners has produced an Inflammatory Bowel Disease Toolkit. The toolkit outlines when to suspect IBD, the appropriate investigative tests and diagnostic tools for IBD, how to manage a flare-up of symptoms, and how to support patients with IBD.

Under the Equality Act 2010, health and social care organisations must make reasonable adjustments to ensure that disabled people are not disadvantaged. NHS England has issued guidance for National Health Service commissioners with respect to the Reasonable Adjustments Digital Flag (the Flag). The Flag has been developed to enable health and care workers to record, share, and view, in digital records, details of the reasonable adjustments required by an individual across the NHS, wherever the person is treated. The Flag was built and launched by NHS England in September 2023, and is being implemented in phases. NHS organisations will be required to fully comply with the requirements of the Flag by 31 December 2025.

Answered by:
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1 January 1970