PARLIAMENTARY WRITTEN QUESTION
(4 December 2024)

To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the adequacy of the prior consultation on the Down Syndrome Act 2022; and when he plans to publish the statutory guidance.

Asked by:
Bobby Dean (Liberal Democrat)

The Down Syndrome Act 2022 started as a Private Members Bill, introduced into the House of Commons in summer 2021. As such, this specific assessment has not been made.

A national call for evidence was launched on 19 July 2022 to inform the development of the statutory guidance required under the Down Syndrome Act. The call for evidence remained open for 16 weeks and received over 1,500 responses, including responses from people with Down syndrome, their families and carers, professionals, organisations, and stakeholder groups representing people with genetic conditions.

Officials are taking forward, as a priority, development of the Down Syndrome guidance. We expect to publish the draft guidance for public consultation as soon as possible in the new year.

Answered by:
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1 January 1970