PARLIAMENTARY WRITTEN QUESTION
Rare Diseases: Drugs (25 March 2024)

To ask the Secretary of State for Health and Social Care, how many appraisals for medicines to treat very rare diseases were started through the National Institute for Health and Care Excellence highly specialised technology programme in each financial year since 2018-19.

Asked by:
Peter Dowd (Labour)

The following table from the National Institute for Health and Care Excellence (NICE) shows the number of highly specialised technology evaluations that started in each year since 2018/2019:

Year	Invitations To Participate
2018/19	4
2019/20	2
2020/21	3
2021/22	7
2022/23	8
2023/24	4
Total	28

Note: The term started has been defined as when the NICE sent the invitation to participate.

Answered by:
Andrew Stephenson (Conservative)
15 April 2024