PARLIAMENTARY WRITTEN QUESTION
Sickle Cell Diseases (7 December 2022)
Question Asked
Asked by:
Janet Daby (Labour)
Answer
No specific assessment has been made.
Specialist haemoglobinopathy teams (SHTs) and haemoglobinopathy co-ordinating centres (HCCs) are required to submit data via the Specialised Services Quality Dashboard on the percentage of patients given pain relief within 30 minutes of presentation with a sickle cell crisis, as per the National Institute for Health and Care Excellence guidelines. The data does not include patients attending non-specialist haemoglobinopathy providers and further work is required to improve the accuracy of the data submission before it can be used to assess compliance.
Answered by:
Neil O'Brien (Conservative)
15 December 2022
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