PARLIAMENTARY WRITTEN QUESTION
Rare Diseases: Diagnosis (22 July 2020)

To ask the Secretary of State for Health and Social Care, what assessment he has made of the effect of covid-19 on the timely (a) assessment and (b) diagnosis of people with rare diseases; and what steps his Department plans to take to tackle the backlog of undiagnosed cases.

Asked by:
Mark Tami (Labour)

The Department, alongside NHS England, is considering the impact of COVID-19 on patients with rare diseases. NHS England has had discussions with some services and patients/patient groups to understand the impact of COVID-19 including what has worked well; what has not worked so well; and opportunities for transformation.

NHS England as a direct commissioner of services and clinical commissioning group commissioners are currently working with all service providers to restore diagnostic capacity for all patient care groups.

NHS England will continue to look at what services can be delivered successfully through virtual communication technology such as telephone consultation and videoconferences. Where services do need to be delivered face-to-face, including the diagnosing of new cases, NHS England will work with providers to ensure that patients have a safe journey through the hospital to the treatment area.

Answered by:
Jo Churchill (Conservative)
1 September 2020