PARLIAMENTARY WRITTEN QUESTION
Thrombotic Thrombocytopenic Purpura (29 June 2020)

To ask the Secretary of State for Health and Social Care, what data his Department holds on the (a) current prevalence and (b) annual incidence of thrombotic thrombocytopenic purpura (TTP) in England; and how that data is collected.

Asked by:
Bob Blackman (Conservative)

The National Congenital Anomaly and Rare Disease Registration Service (NCARDRS) records people with congenital anomalies and rare diseases across the whole of England. Data collection for rare diseases is at an early stage and currently NCARDRS does not collect data on thrombotic thrombocytopenic purpura (TTP). NCARDRS is working to expand rare disease registration and will work with interested parties to advance data collection on rare diseases including TTP.

Answered by:
Jo Churchill (Conservative)
16 July 2020