PARLIAMENTARY EARLY DAY MOTION
CYSTIC FIBROSIS TRUST CAMPAIGN (3 June 2018)

That this House commends the efforts of the Cystic Fibrosis Trust in campaigning for access to the precision medicine Orkambi; recognises that the campaign has been ongoing for nearly three years; further recognises the urgency of the situation as every month that passes is critical for people with cystic fibrosis; welcomes the negotiations between the NHS and Vertex; and calls on the Government to urgently intervene to help secure a timely resolution to ensure an agreement is reached that will enable patient access to the drug without further delay.

Sponsored by:
Sir Mike Penning (Conservative)