PARLIAMENTARY EARLY DAY MOTION
ACCOUNTABILITY OF NHS ENGLAND (7 June 2015)

That this House is concerned that it has been six months since the threat of a legal challenge forced NHS England to suspend its scorecard system for deciding which drugs to fund; notes that this system was eventually scrapped completely and that a three-month consultation was launched on 27 January 2015 to come up with a new system; is extremely concerned NHS England has still not announced what the new process will be; is further concerned at repeated failures by NHS England during these six months to turn up to meetings or respond to correspondence in a timely or proper manner; expresses particular concern that a 27 March 2015 letter from the #fundourdrugsNOW campaign setting out very serious issues has still not received a proper response over eight weeks later despite the Life Sciences Minister requesting this letter and asking NHS England's Chief Executive, Simon Stevens, to 'respond in full'; expresses further concern at NHS England evading accountability when Ministers have repeatedly claimed the issues at hand are matters for NHS England; further expresses strong concern that 180 people with Morquio syndrome, Duchenne muscular dystrophy and Tuberous sclerosis complex are being repeatedly let down; urges NHS England to respond in full, which it has so far failed to do; calls on Ministers to stand up for the 180 patients and urgently hold NHS England accountable; and further urges NHS England, at its upcoming 25 June 2015 meeting, to grant the interim funding campaigners have called for.

Sponsored by:
Greg Mulholland (Liberal Democrat)