PARLIAMENTARY DEBATE
People with Disabilities: Cost of Living - 16 May 2023 (Commons/Westminster Hall)

I beg to move,

That this House has considered the cost of living for people with disabilities.

It is a real pleasure to serve under you, Dr Huq. In the years in which I have had the privilege of being the Member of Parliament for Motherwell and Wishaw, I have received loads of briefings from many organisations to support my work in these types of debate. For this debate, I have received a record number of briefings, and they have come from these organisations, which I shall name check: Scope, the Food Foundation, Guide Dogs, the British Association of Social Workers, the MS Society, Which?, Mencap, the Cystic Fibrosis Trust and the Motor Neurone Disease Association. That tells its own story.

Those organisations are so worried. They are telling me that the Government have continuously failed disabled people, their carers and their families; that the Government are tinkering around the edges of a cost of living crisis that is affecting millions of people across the United Kingdom; and that the impact of the crisis affects those with disabilities, their carers and their families even more seriously than it affects the rest of the population.

I woke this morning to the news that the Prime Minister is having a farm-to-fork summit on the cost of food—the figure of 19.1% is being bandied about as a headline for food price inflation—and when I opened my iPad, I read about a father who had admitted to stealing baby formula to feed his child because his wife had been watering down the formula. That is the UK in 2023, and the situation is even worse for disabled households.

Scope’s recent disability price tag report shows that the cost of being disabled in 2023 has risen to £975 per month for a disabled household, inclusive of disability benefits. People do not get disability benefits on top; that is inclusive. The personal independence payment was designed to offset the additional costs associated with being disabled, but it is now totally inadequate. That figure represents a £300 per month increase from 2016-17, when Scope last did this. Scope also says that it would be £1,122 per month if the figure were updated to accommodate the inflationary costs for the 2022-23 period. The bottom line is that Government support for those with disabilities has been wholly inadequate throughout the cost of living crisis. Disability Rights UK has said that the cost of living payments “don’t touch the sides”.

The hon. Lady is making a powerful argument. The Resolution Foundation said recently that those with disabilities have 44% less available to spend in the current economic crisis than those of us who are fortunate enough to be fully abled. At a time when energy costs have made life more difficult for everyone, does she think that we have perhaps missed a vital opportunity to support the disabled by helping them more with those costs?

The hon. Lady will know that I do not often agree with her, but in this case I totally agree. There are many other organisations—she mentioned the Resolution Foundation, and the MND Association has outlined that those with motor neurone disease face additional costs of £14,500 per year. Naturally, those with the condition have much higher energy needs in order to power their essential, life-saving equipment.

The latest Government statistics show that 68% of PIP decisions appealed by a claimant were overturned. Does the hon. Member agree that there is a pressing need to improve the PIP assessment to ensure that people who are disabled or have a serious health condition do not have to fight continually through reassessments and tribunals to get the support that they so desperately need?

I could not agree with the hon. Lady more. This is a scandal, and it is a huge waste of public money with the number and cost of appeals and tribunals.

To follow on from that point, why would the Scottish Government seek to make it harder for people to access support through the PIP system for when it is fully devolved to the Scottish Government?

I wish that the hon. Member would take that back. In Scotland, we treat people with dignity, fairness and respect. We help them to fill in their adult disability payment applications, and we make it much easier for them—[Interruption.] The hon. Member is shaking his head, but he is wrong. We make it easier for people with long-term illnesses from which they will not recover. They do not have to go through continuous reassessments.

Will my hon. Friend point out to the hon. Member for North Swindon (Justin Tomlinson) that unlike the UK Government and their pernicious welfare system, the Scottish Government have actually worked with people with experience of the benefits system and those who have disabilities in designing that system? It is rather rich that he lectures us from a Tory Government who have been found to have treated people rather inhumanely.

I thank my hon. Friend for that. I am appalled at the remarks being made. I shall move forward and I will not take any further interventions in the meantime; I need to make progress.

The insufficient cost of living support, combined with an inadequate system of social security and an economic crisis created by this Government and their predecessors, have created an unwelcome perfect storm for those with disabilities, plunging millions into poverty. Disabled people often face higher costs for their energy, and they are saying that they need more heating—most disabled people need more heating to stay warm. Others say that they must use more electricity simply to plug in their assistive technologies. Those extra costs mean that disabled people have less money in their pockets and, in many cases, go without. The result is that disabled people are more likely to have a lower standard of living, even when they earn the same as a non-disabled person.

According to the British Association of Social Workers, 7 million people—almost half of those living in poverty in the UK—are either disabled or live with someone who has a disability. Families with a disabled loved one are seriously struggling as they have to make difficult decisions and cutbacks. Guide Dogs UK has highlighted how families with a child with visual impairment are being hit incredibly hard, and the mental health of parents is suffering.

The disabled poverty figures are unsurprisingly reflected in food bank usage, with the Trussell Trust advising the Work and Pensions Committee that disabled people are hugely overrepresented in food poverty. More than half of food bank users in the UK are disabled.

The covid pandemic deepened pre-existing inequalities in society for disabled people, and the rise in inflation has disproportionately hurt the most vulnerable in society. Disabled people and their households have, on average, lower incomes than their non-disabled counterparts in spite of incurring higher costs. Poverty and disability are often mutually reinforcing, particularly for working-age adults.

The hon. Lady is making a powerful speech about the absolute travesty of the Government’s treatment of disabled people and the social security cuts that have been added to by the cost of living crisis. Is she as concerned as I am that there will be consequences, including, as we have seen over the past few years, disabled people on social security who will die?

That is the most awful fact and the most worrying thing that has been said today. Many of us in this Chamber will have direct knowledge of that from casework and constituents we have had to deal with.

As I said, disabled people tend to spend more on essential goods and services. People with special dietary requirements have been particularly hard hit by food inflation. Statistics from January this year show that households with specific dietary requirements pay up to 73% more for food than those who do not need to buy “free from” products, according to analysis by The Allergy Team.

In December 2022, the Food Standards Agency found that households with food hypersensitivity—food allergy, intolerance and coeliac disease—spent an extra 14p for every £1 compared with those who did not need to buy alternatives. For example, pea milk is £2 a litre—50% more expensive than cow’s milk. Gluten-free penne pasta at Morrisons jumped by 125% in 12 months, from 60p in January 2022 to £1.35 in January this year. I have many other examples.

The SNP urges the Government to use all the powers at their disposal to tackle the cost of living crisis on the scale required. We continue to push them to use their powers to tackle the cost of living crisis, including access to borrowing, providing benefits and support to households, VAT on fuel, taxation of windfall profits and regulation of the energy market. The reversal of the planned increase in the energy price guarantee is welcome, but bills will still be unsustainable for many people. Disabled people and their carers and families across the UK are paying a steep price for the economic mismanagement of the UK Government, with the cost of living forcing many to choose between heating their homes or eating.

Everyone welcomes the UK Government’s increase in benefits by 10.1%. However, the Chancellor has yet again failed to reinstate the universal credit uplift and scrap the unfair benefit cap and two-child limit. Scope stated that a further long-term solution was required to address the crisis of costs that many disabled households now face. Legacy benefit claimants, many of whom are long-term sick or disabled, have been unjustly denied the additional uplift that universal credit claimants got during the pandemic. The SNP has consistently called on the Government to reinstate the uplift and increase it to £25 a week, and to extend it to all means-tested legacy benefits, as well as getting rid of the benefit cap and the two-child limit. The UK Government’s continual refusal to fix the extensive known problems with universal credit is unacceptable and is subjecting vulnerable people to additional unnecessary hardship.

Although a one-off additional payment of—wait for it—£150 to disabled people is welcome, it will not provide the same kind of long-term assistance as a benefits uplift. As I said, Disability Rights UK says that the lack of “meaningful increases” in disability benefits over recent years means that the payment is not enough and does not “touch the sides” of what disabled people, families and carers need. Rising food bank need demonstrates that more and more people are going without the essentials, and the Trussell Trust said:

“The level of benefits, especially benefits for people who are sick and disabled, needs to be high enough for people to live.”

I remember sitting in the main Chamber and listening to a Tory Member who was surprised that sickness benefit was £92-something, which she thought was quite generous. She thought that was a daily rate. It is a weekly rate, and it has not increased by that much. We cannot continue like this. We are punishing the most vulnerable people in our society.

According to a 2020 report from the Royal British Legion and Poppyscotland called “Making the benefits system fit for Service”,

“households containing working age adults in the ex-Service community are over twice as likely to receive sickness or disability benefits as UK adults. Within that increased likelihood there will be veterans in receipt of military compensation who may rely on welfare benefits more than their peers, such as those who are unable to undertake civilian employment due to their injury or disability having left Service ”.

Research participant responses demonstrated common themes, from problems completing applications to difficulties explaining the impact of service-related conditions on wellbeing. The research was conducted prior to the introduction of the adult disability payment in Scotland. I should like to ask the Minister: what are the Government going to do about this scandal? Organisations are telling me that the measures already announced have little or no impact because of spiralling food inflation and energy costs.

According to the House of Commons Library, the Government’s planned expenditure on Trident renewal for 2023-24 is £3 billion. The UK Government are making a political choice to spend vast amounts during a cost of living crisis—an obscene commitment to spend money on the renewal of nuclear weapons in the face of the difficulties being met day and daily by the most vulnerable people in the United Kingdom.

The UK’s recent spring Budget was another missed opportunity for the Government to take meaningful action to boost income and support households, including disabled people—really, you have to do better. The changes to UK benefits and the wider support to better meet the needs of disabled people are welcome, but the effect of those changes must not force more people into low-paid and insecure employment. The disability pay gap must be looked at seriously by the Government. Will the Minister tell us what they are actively doing to end it?

The health and disability White Paper introduces a new universal credit health element, with eligibility through PIP that could be much more restrictive than the work capability assessment. Around 45% of “no work requirements” universal credit recipients in Scotland are not in receipt of either a disability benefit—such as attendance allowance, disability living allowance or personal independence payment—or carer’s allowance. Once the policy is enacted, divergences between PIP and ADP could result in diverging conditionality and spend on universal credit. As the Minister will no doubt acknowledge, I have already raised this issue with him. Can we have an update on what is happening there? Disability organisations are concerned that the changes are likely to see fewer sick and disabled people getting the support they need.

The new in-work progression offer to help people into work, increase their earnings and move them into better-paid jobs will inevitably mean that disabled people are exposed to the sanctions regime. By September this year, 600,000 people claiming universal credit, including disabled people and those with physical and/or mental health conditions, will be required to meet a work coach to increase their hours or earnings or risk being sanctioned. We know that sanctions do not work; the Government admitted that in the paper they kept hidden for quite a long while.

The health and disability White Paper is a missed opportunity to implement much-needed changes. The MS Society has outlined how the Government’s White Paper does not include substantive plans for how the PIP process will be improved or any information on how the criteria may be reformed. Those are real issues right now and there is not much hope, looking forward, for people with disabilities.

The Scottish Government have taken action, within their devolved powers and fixed budget, that will help disabled people facing the combined effects of higher energy bills, rising inflation and UK Government policies. In Scotland, the Government believe that disabled people should have freedom, dignity, choice and control over their lives, and they want to remove barriers that prevent disabled people from enjoying equal access to full citizenship.

The Scottish Government have therefore introduced things such as the fuel insecurity fund. They also work with Fuel Bank Foundation, the Scottish Federation of Housing Associations, Advice Direct Scotland and the Wise Group. Similarly, core staff costs will be provided to Energy Action Scotland, as Scotland’s national fuel poverty charity. The Scottish Government are trying their best; I do not see that level of commitment and action from the UK Government.

Throughout February and March this year, almost 400,000 low-income households in Scotland automatically received £50 in financial support towards their energy bills, in addition to what the UK Government have done. The Scottish Government are also doing a lot of other things, including increasing carer’s allowance. They are doing their best but, without the full powers, including borrowing powers, it is impossible for them to do much more. I should also point out that partnership working is much more normal practice in Scotland. No Government policy is introduced without taking into account the lived experience of people affected by that policy, and I urge this Government to take the same approach.

I realise we are short of time, so I would like to close by pleading with the Government once again to exercise some empathy and compassion for those with disabilities and to try to embody the sense of humanity demonstrated by Kevin Sinfield towards his friend Rob Burrow on Sunday. We must remember that each and any one of us can become disabled. The Government must act now to offer greater support to those with disabilities to offset the additional costs during the cost of living crisis.

The hon. Lady alluded to the moving and emotional scenes of Kevin Sinfield carrying his friend over the finishing line. Does she agree that that eloquent video spoke more to the heart of the nation than any moves by any Government could ever do, unless they put money where their mouths are?

I could not have put that better myself; that is so true. I had help writing this speech, as many of us do, and my young researcher put in that reference; I did not see that event, because I did not watch any TV over the weekend—I completely switched off. It is true that something like that brings a nation together to understand how we must be more caring. It is not about being nice to people; it is about enabling them to live full lives as full citizens.

Kevin Sinfield is my constituent and a good friend. The House should know that his fundraising started because he was concerned about the future of his friend and his friend’s family. The families of severely disabled people are worrying for their futures—for their survival. That is what prompted him to start fundraising—not just to do the research, but to ensure they had a future together.

The question of people becoming disabled through no fault of their own is germane to the entire debate. The perception is often that disabled people are the folk we see in wheelchairs who have always been unable to do things. So many people suffer from disabilities through accident or disease, and none of that is foreseeable—whole lives change.

This is my conclusion, I assure you, Dr Huq. Let me lay out disability organisations’ simple asks, which will improve the lives of so many people. Will the Minister talk about Government funding for a social energy tariff that discounts energy bills by 50% for disabled people, carers and those on low incomes? Could people be automatically enrolled in that scheme and could it be mandatory for all suppliers? Will the Government reverse the warm home discount eligibility criteria changes, uprate benefits in line with inflation and ban all forced installations of prepayment meters? Can hon. Members believe that people with disabilities are having prepayment meters forced on them in 2023? May I have the Minister’s assurance that he will look at all those asks, make sure they are acted on and thus end the misery for so many of our disabled citizens, their carers and their families? They are not asking for charity; they are asking for equity. All the people I have spoken about deserve so much better.

There are three Back Benchers down to speak. I will take the three winding-up speeches from 10.28 am—we do not get any extra time because of the late start—so speeches should be limited to about eight and a half or nine minutes. I call Justin Tomlinson.

Thank you, Dr Huq—a double thank you for your late substitution this morning, for which we are all very grateful. It is a pleasure to follow the hon. Member for Motherwell and Wishaw (Marion Fellows), who clearly demonstrated a real passion for this important subject. I think her constituents would recognise that she is a real champion for those who need a voice in this area, and I pay genuine tribute to her.

I also pay tribute to the Minister, who I know will respond in full. He has immersed himself in the details of his role and has always shown himself willing to engage with stakeholders. I think we would all agree that there is a wealth of knowledge and expertise in local and national organisations, and the Minister is passionate to utilise that wherever possible. That has come through very clearly in his time as a Minister.

I pay tribute to local and national organisations up and down the country that provide people with advice and support in accessing the often complex and daunting layers of support that are potentially available. For example Tim Saint, of the Swindon Carers Centre, does a huge amount of work in our community to help people access support. During my time as a Minister, I was surprised to see how many people miss out on the various forms of support that we have all voted to give them, often because they are faced with a complex and daunting system.

We have made progress. Under PIP, including the legacy benefits of DLA, and attendance allowance, we are now spending £12.5 billion more in real terms on help for those with disabilities or long-term health conditions. Under the old legacy system of DLA, only 16% of claimants would access the highest rate of support. A few years ago, that figure had reached 33%, and for some health conditions, in particular mental health conditions, people are now six times more likely to access the higher rates of benefits. So we are very much heading in the right direction, and there are further opportunities to turbo-speed improvements with the forthcoming White Paper.

There are two key lessons the Government can focus on: speed and specialisation. First, on speed, there are lessons that can be learned from the welcome changes to the special rules for terminal illness. We were able to apply a policy change that was co-designed by stakeholders, their policy teams and end users—people with real-life experience. Using the same principles, we can widen the severe conditions criteria in the PIP system, removing up to 300,000 unnecessary assessments or reassessments each year.

The principle behind that is that we would look at specific conditions. We could then be fairly confident about the trajectory of that condition and set in place a timetable of support. For those people whose condition has perhaps changed more quickly than expected, there would still always be the option to have a light-touch assessment to speed up their access to the increased rate of support.

There is a sort of principle around this, which already exists with universal credit and the industrial injuries disablement benefit. An independent panel could look at these conditions, and one example would be motor neurone disease—I cannot understand what the point would be of putting somebody with MND through an assessment. Where we can be fairly confident of the deterioration of health conditions, we could put in place an automatic right to support, with the backstop that, if somebody’s condition, sadly, deteriorates more quickly, a light-touch assessment could then move them to the higher level of support much more quickly. Removing 300,000 people a year would mean we have more resources available to speed up the process for those who would go through the more standard, traditional route.

During covid, we made sure we kept the gateway open for new entrants, and it is a tribute to staff up and down the country that disability benefits continued. We used video and telephone assessment, a further benefit of which is that it allows for greater specialisation in terms of the assessors. Rather than relying on a fixed number of staff in each geographical location, we can assign someone with a particular health condition via telephone or video to other locations in the country. That also helps with the point about making sure that the assessments are right first time, so that people do not have to go through an appeals process further down the line.

I know that these broad themes are being considered as part of the White Paper, but they are a real win-win and they are probably things that people could rally around, regardless of which political background they are from. I certainly know from my time working with our very knowledgeable stakeholders and policymakers that there would be huge support for them.

A broader point is that not everything is black and white. As much as I admire the passion and drive of the speech by the hon. Member for Motherwell and Wishaw, there was a presumption that everything the Government do is terrible and that everything the Scottish Government do is good. I say that because I have a brother who is a proud Labour party supporter, another brother who is an SNP supporter, a sister who is a sort of Lib Dem/ Conservative and a cousin who is a Green, so we cover all the bases, and I was very much brought in the belief that things are not black and white.

To their credit, the Scottish Government identified that we could and should have made changes to the special rules for terminal illness and to PIP, which is the main disability benefit. The Scottish Government have had challenges; they had hoped to complete both those tasks many years ago, but that has proved a lot more complex, particularly when we start to unravel the complicated machinery behind those benefits.

In my former life, I attended inter-ministerial meetings with Scottish officials and Scottish Ministers, who were always a great pleasure to work with, and I absolutely admired their end goal. However, they also had that presumption that the system was completely broken and had to be completely changed. Therefore, they sometimes would not listen to stakeholders and policy experts in disability and health charities who wanted changes but not necessarily the changes the Scottish Government had settled on.

For example, there is a principle that the Scottish Government do not like assessors. I understand that, given a lot of the media coverage of the earlier years of PIP, in particular. However, there is a reason why, under DLA, only 16% of claimants got the highest rate of support, compared with 33% under PIP. Many of the people who navigate the system are the least well equipped to do so. Therefore, we are relying on a system where, in effect, their evidence—self-supplied—is the only basis for them to get DLA. However, assessors tease out additional things and fill in the gaps, which is why we have gone from 16% to 33%.

The hon. Gentleman is giving an incredibly thoughtful speech, but I have a fundamental objection to assessments. However, even if I was to follow the former Minister down the assessment route, we would find ourselves in a ridiculous situation where the people carrying out the assessments have no professional qualifications to enable them to adjudicate on the condition. For example, in one recent constituency case, someone was actually asked, “Does your son still have autism?”. That is the level of expertise we are dealing with and that, I am afraid, shows that the system is broken.

That shows the slight misunderstanding here—and I say that in a good spirit. All the health practitioners who carry out assessments have at least two years’ experience and come from health professional backgrounds. However, the point where the hon. Gentleman is right is that they are not necessarily specialists in certain areas. If someone goes to a GP, the fact that they are the initial gatekeeper to the NHS does not mean they are an expert in everything—they refer people on to specialists. There would generally be five or six assessors in each location, so we cannot expect the collective knowledge of those assessors to cover every single health issue. Through the introduction of telephone and video assessments, however, we can refer people, and that is what I am pushing for. The point is: the role of the assessors was not broken, but it needed improving. That is what both the UK and Scottish Governments were looking to do.

I am urging the Scottish Government to be cautious about relying too much on the claimant, because not all claimants are in a position to argue their case and understand the conditions. It is not even just a case of that; it is also about people being unaware of additional health conditions. I made a point earlier about those with mental health conditions now being six times more likely to get access to the highest rate of PIP. Many people do not realise that their mental wellbeing is being impacted by their physical health condition. They would enter the PIP system thinking, “My physical health condition is impacting on me. I’ll fill in all the bits on that and answer the questions.” However, the assessor’s questions on how that impacts mental wellbeing then begin to identify additional challenges that the claimant was either unaware of or had got used to and took for granted. That then gives them the additional points that allow them to enter the higher rate.

It is same around the special rules for terminal illness. We extended that from six months to 12 months, working with hospices, the health and disability charities and GPs. The Scottish Government, with very good intentions, tried to create a system where it was automatic. They then realised that not everyone can be dealt with automatically, because we are all terminally ill in the sense that nobody lives forever. Conditions then have to be put in, but that inadvertently creates a more complex system. It would have just been easier to say, as Northern Ireland did, “Actually, on this occasion, the UK Government—having listened to the stakeholders and health and disability charities—might be on to something. In this case, we ought to do the same.”

Order. I remind the former Minister that he has spoken for 10 and a half minutes, and I did want speeches to be kept within nine minutes. If he wishes to give us a concluding sentence, I will allow it, but we do have other Back Benchers.

Understood, Dr Huq. In conclusion, I urge the Minister to keep a laser-eyed focus on disability employment, ensuring that we provide support for not just the individuals seeking work but employers. The majority of people with disabilities develop them during working age, and we need to ensure that employers—particularly small and medium-sized employers—are equipped to support people with changing health conditions.

I call Wendy Chamberlain. Keep it within seven minutes, if you can, and then Marion Fellows gets time to wind up.

I shall keep my remarks short. I am grateful to take part in the debate, and I congratulate the hon. Member for Motherwell and Wishaw (Marion Fellows) on securing it.

At a basic level, it is more expensive to be disabled in this country, in the same way that it is more expensive to be poor. On every measure, disabled people and households have higher routine living costs than non-disabled households. In her opening remarks, the hon. Member referred to analysis from Scope’s disability price tag, published only last month, which stated that disabled households need on average an extra £975 to achieve the same standard of living as non-disabled households. Accounting for current inflation, that is over £1,100.

The reasons for that extra need are simple. Disabled households need to divert funds to pay for specialist products and services. They need to think about disability-related products that are often essential and costly, and they have increased energy costs as a result, both for heating and for electricity in relation to nutrition needs, as the hon. Member for Motherwell and Wishaw mentioned. A greater percentage of a disabled person’s disposable income is spent on food and energy, so the cost of living crisis has a disproportionate impact on them even before we think about things like the higher insurance premiums that disabled people face. The reality is that there has been a lack of financial support, and issues with PIP assessments mean that many are not accessing the payments to which they should be entitled.

I have particular concerns about the assessment of fluctuating conditions such as MS, ME and long covid. As has been highlighted, the expertise is simply not there for those kinds of complex conditions. On one day—and that day might happen to be the assessment day—a person may experience a better period of health than the rest of the time. I want further work on the health and disability White Paper to consider those things.

We are discussing Scotland quite a bit, but as a Scottish MP I cannot help doing so. I am conscious that MPs may sometimes have a bit of confirmation bias because people come to us from a casework perspective after trying every other source of help, so they are often desperate and some of the cases are quite complex. The Scottish Affairs Committee, of which I am a member, conducted an inquiry on welfare in Scotland 18 months to two years ago. I heard from stakeholders in Scotland that there was a more compassionate approach towards setting up the social security system in Scotland.

I will also say, however, that I am seeing casework on delays in adult disability payment processing in Scotland, so I hope that we will not end up in a similar position to elsewhere in the UK. I am concerned that the lack of a dedicated social security Minister in the new First Minister’s Scottish Government means a potential dilution of focus; I hope that that is not the case. The reality is that means-tested benefits are set too low, and the £150 cost of living support payment for disabled households, which was welcome given everything that I have outlined about the additional costs, was not enough.

In my remaining remarks, I will focus on carers. Hon. Members may not be aware that my private Member’s Bill, the Carer’s Leave Bill, has been progressing through Parliament; I am pleased to say that it should have its Third Reading in the House of Lords on Friday and I am hopeful that it will receive Royal Assent shortly thereafter. The Bill intends to offer people who are working as unpaid carers but are in employment the right to request time off from their employer. That is because the vast majority of disabled people will have support from an unpaid friend or family member, which could be to meet physical caring needs or to do the admin and emotional support around caring.

Carers provide unpaid work worth £530 million a year. However, 44% of working-age adults providing unpaid care for more than 35 hours a week are living in poverty. Frankly, that means that the people they are caring for are also living in poverty. When I was engaging with constituents about my Carer’s Leave Bill, it was very difficult to find constituents who would actually benefit from the Bill. The reality was that their caring responsibilities meant that they had eventually had to give up work because they just could not combine them both. Although I am hopeful that my Bill will help people—indeed, Carers UK estimates that it will help 2.4 million carers—there is clearly much more to do.

I want to take the opportunity to mention the very sad death of Kirstie Howell, the chief executive of Fife Young Carers. She did a great deal of work, and so does the charity, across Fife, including North East Fife. I send my condolences to the organisation and to her family.

If we do not provide the right support for young carers who are caring for disabled family members, they will not get into work in the first place and their household will continue to live in poverty. One way for the Government to help would be by raising the earning limit on the carer’s allowance. The reality is that caring never stops, so if we allowed those who are caring to work more before losing the carer’s allowance, it would potentially help disabled people and their families to deal with the cost of living crisis that we are facing. The Government have done a number of things during the cost of living crisis, but we feel that they have not done enough.

I will leave hon. Members with one last thought. I chair the all-party parliamentary group on ending the need for food banks. Along with the hon. Member for Motherwell and Wishaw, we conducted our first inquiry, which looked at cash or food in different responses to food poverty. A very telling statistic for me was that the one period of time during covid when food bank use went down rather than increasing was when the £20 universal credit uplift was in place. That tells us that when people get additional support, they are spending it on food, provisions and things they need for their families. For disabled people, we need that more than ever.

It is a pleasure to serve under your chairmanship, Dr Huq. I thank the hon. Member for Motherwell and Wishaw (Marion Fellows) for securing this debate on an important matter.

I rise to speak today as the daughter of a woman who lived with disabilities. Her daily challenges were significant, but I did not think of her as disabled until well into my late teens or early 20s, when I fully grasped her reality. That is because she lived a full and active life; she was ferociously independent and did not want her challenges to affect the rest of us or affect how she was treated by other people. I think we all know of people living with disabilities who show immense courage and fortitude. I pay tribute to them, because they do not want to be dependent. They want to live full, independent lives.

We know that the cost of living crisis has had a severe impact on many of our constituents. Last year, I ran a cost of living survey in my constituency. The responses from those caring for people with disabilities and from those living with disabilities were particularly heart-wrenching. One mother made the difficult decision to turn off her disabled son’s oxygen concentrator because she could no longer afford to pay her energy bills. He now relies on oxygen cylinders, which run out and which must be replaced on a regular basis. That brings its own challenges, but effectively their lives are now more complicated than they need to be.

Another constituent, in addition to having a spinal condition that has left him unable to work, is diabetic. He told me that because of the cost of living crisis and food inflation, he can no longer afford to follow the recommended diet for his diabetes. In his own words, he is playing Russian roulette with his health.

We all have examples we could share from our constituents. The simple truth is that the increase in the cost of living has had a disproportionately detrimental effect on people with disabilities. Disabled individuals and their households have, on average, lower incomes than those without disabilities. Furthermore, many people with disabilities have additional costs related to the treatment and mitigation of their condition. Those who encounter difficulty in leaving their home also have the added costs associated with being at home more often, such as higher energy bills.

What is more, even with existing disability-related financial benefits, those with disabilities are more likely to find themselves in relative income poverty. That has been compounded by benefits not having previously kept pace with inflation. Without drastic action, we risk a situation in which the most vulnerable in society are driven further into poverty. Reintroducing the universal credit uplift and extending it to all claimants on legacy benefits is a request that I have had from a number of constituents. What assessment has the Minister made of the help available to those with disabilities in the cost of living crisis?

I call the first of the three Front Benchers, David Linden for the SNP.

It is a pleasure to serve under your chairmanship, Dr Huq. I pay tribute to you for getting here in double-quick time as a late substitution. I commend my hon. Friend the Member for Motherwell and Wishaw (Marion Fellows) on securing this debate on a very important topic.

The cost of living crisis has permeated so many different aspects of our communities. The topic is brought up continually in my weekly advice surgeries, where sadly constituents have repeatedly told me that they are struggling to afford their weekly food shops and monthly energy bills. It is very much either/or. I am sure that other MPs in Westminster Hall today can relate to that—how helpless it feels to be sat across the surgery table from people who are clearly struggling and who desperately need support.

In far too many cases, people fall between the cracks and end up without the help that they not only deserve, but are entitled to. That is far too often the case for disabled people, who incur hidden costs through no fault of their own. As we have heard repeatedly this morning, disabled people and their families spend a greater share of their income on food and energy, the commodities that face the steepest rises in inflation. Again, as we have heard, people with special dietary requirements are being hit particularly hard by food inflation, with statistics from January showing that households with specific dietary requirements are paying up to 73% more for their food than those who do not need to buy “free from” products.

Disabled people face many additional costs related to the treatment and mitigation of their disability, such as equipment or therapies. In some utterly awful cases, disabled people face the impossible choice between powering essential medical equipment such as wheelchairs and ventilators and putting food on the table. All those extra costs hit harder because disabled individuals and their households have, on average, lower incomes than their non-disabled counterparts, with 27% of disabled people living in poverty compared with 21% of non-disabled people. The result is that disabled people are more likely to have a lower standard of living, even when they earn the same.

According to research from Scope, on average, disabled households need an additional £975 a month to have the same standard of living as non-disabled households, and if that figure is updated to account for inflation over 2022-23, those extra costs rise to £1,122 a month. The price tag on disability feels incredibly dystopian. What kind of Orwellian society are we living in when having a disability incurs a price tag?

We have only to reflect on the words of Nye Bevan to understand the absurdity of the situation. Bevan said:

“Illness is neither an indulgence for which people have to pay, nor an offence for which they should be penalised, but a misfortune the cost of which should be shared by the community.”

Let me make it clear: illness is not an indulgence or an offence. People should not have to pay or be penalised. If Nye Bevan could understand that in the 1940s, I am puzzled as to why the current British Government are having so much difficulty with the concept.

The Government must do more—so much more—to use all the powers at their disposal to tackle the cost of living crisis on the scale that is required. While the uprating of benefits in line with inflation was welcome, for far too many it sadly came too late. The additional payment of £150 to disabled people, while welcome, will not provide the same long-term assistance as a sustainable benefit uplift. Indeed, Disability Rights UK is on record as saying that the “lack of meaningful increases” in disability benefits over recent years means that the extra £150 “doesn’t touch the sides”, and it is right.

As my hon. Friend the Member for Motherwell and Wishaw said, the Scottish Government are taking action within their devolved powers and within their fixed budget to try to help disabled people with the combined effects of higher energy bills, the general rise in inflation and the impact of Westminster policies. Yes, there are things that we can do—for example, the winter heating payment; the Scottish Welfare Fund; spending money on discretionary housing payments, such as the £84.1 million being made available this year; the council tax reduction scheme; and the most generous concessionary bus scheme—but the reality is that devolution was not, and in my view never has been, set up to be a sticking plaster for bad welfare policies made here in London.

Yes, the Scottish Government are doing all that, but they are doing it with one hand tied behind their back. The brutal reality is that every additional pound that we spend on those measures to help with rising costs has to be funded by budgetary reductions elsewhere, given our largely fixed budget and our limited fiscal powers. Scotland has already suffered a decade of British Government-imposed austerity since the financial crisis, which has disproportionately hurt the most vulnerable people in society and has resulted in under-investment in our crucial public services. The SNP Government in Holyrood are using their limited powers and resources to do everything they can, but that has to be matched by the British Government. With every day that Westminster fails to use its reserved powers to adequately tackle the cost of living crisis, it is demonstrating that independence is the only way for people in Scotland to boost their income and build a truly fairer society.

In closing, I emphasise what is at stake for my constituents, whether they are in Barrowfield or Baillieston. We find ourselves in a dire situation in which it literally costs to be disabled—there is a price tag on being diagnosed with a disability. The additional monetary costs associated with being disabled are compounded by the myriad ways in which society is set up to penalise disabled people.

The social model of disability tells us that people are disabled by barriers in society, not by their impairment or by indifference. The barriers can be physical, such as in buildings that do not have accessible toilets or libraries that do not have Braille versions of books; attitudinal, such as the assumption that disabled people cannot do certain things; or systemic, as in this case, when the cost of simply living as a disabled person is higher and Government support has systemically failed. It is only by removing those barriers that we can achieve equality and offer disabled people more independence, choice and control. That is why I believe that the Government must do so much more to protect the most vulnerable in society.

I call shadow Minister Vicky Foxcroft for the official Opposition.

It is a real pleasure to serve under your chairship, Dr Huq; I am very happy that you could make it here today. I pay tribute to the hon. Member for Motherwell and Wishaw (Marion Fellows) for securing this important and timely debate. There is no doubt that disabled people are being disproportionately impacted by the cost of living crisis, and it is right that we are here to debate the issue. As the hon. Member outlined, a number of organisations have been in touch to outline their fears and worries about how disabled people are struggling, and I hope that the Minister will respond positively to the many points that the hon. Member and others have raised.

The economic impact of disability is significant. Many disabled people are excluded from full economic participation. According to the most recent figures from the Office for National Statistics, the employment rate for disabled people is just over 53%, which compares with almost 83% for non-disabled people. In other words, the disability employment gap stands at just under 30 percentage points. From speaking to many disabled people, I know that many of them want to work but are prevented from doing so by societal barriers.

The difficulties do not stop with getting into employment. Once they are in work, disabled people also face a disability pay gap. As of 2021, the gap stands at 13.8%, which means that disabled people earn almost £2 per hour less on average than non-disabled people. As other hon. Members have outlined, the other side of the economic impact is the extra cost associated with having a disability.

My hon. Friend is making an excellent speech. When I met representatives of Scope a few months ago, one issue they raised was the household support fund. It is designed to help vulnerable people across England and is administered by local authorities, but it has not helped many disabled people. Many people are not aware of its existence. Does she agree that that is shocking and that, as the Government have extended the fund until the end of March 2024, it is vital that people are made aware of the support that is available?

My hon. Friend raises an important point, and I completely agree.

The costs will vary depending on the specific disability or disabilities that an individual has, but they might include assistive equipment, care and therapies—things that are essential for them to live their lives. My hon. Friend the Member for Oldham East and Saddleworth (Debbie Abrahams) raised the fear of more disabled people dying, and my hon. Friend the Member for Wirral West (Margaret Greenwood) rightly pointed to problems with PIP decisions and the need for the reform of the assessment process.

We all know that disabled households tend to spend more on essential goods and services such as heating, food and travel. As we have heard many times, last month the disability equality charity Scope released updated research on the extra costs associated with having a disability—the so-called disability price tag. When Scope last calculated the price tag in 2019, it stood at £583 per month. The update makes for very sober reading: over the last four years the price tag has risen to a shocking £975 per month, which is equivalent to 63% of household income. That means that disabled households need to find almost £12,000 extra per year to achieve the same standard of living as non-disabled households.

The hon. Member for North East Fife (Wendy Chamberlain) rightly articulated the escalating rise in food costs, which under the Conservatives have risen at the highest rate for more than 45 years. Depending on the nature of their disability, some people have difficulty preparing certain foods and rely on pre-prepared or convenience food, which frequently works out to be more expensive than buying raw ingredients. The price of ready meals rose by almost 22% in 2022. If someone has difficulty standing or sitting for long enough to prepare a meal from scratch, they might feel they have no choice other than to pay those prices.

The hon. Member for Chesham and Amersham (Sarah Green) raised the case of a constituent who could not afford their energy costs and had to switch off important equipment. Disabled people have been hit hard by rising energy prices not only because they might have difficulty keeping warm and spend more time at home, but because many have to run life-saving medical equipment. In the Commons Chamber at the end of last year, I raised a case in which the actor Kate Winslet stepped in to help a family faced with a £17,000 bill.

I am sure the Minister will tell us that the Government have taken steps to support disabled people through the crisis by delivering the disability cost of living payments. Disabled people may also benefit from broader support measures such as the energy price guarantee and other cost of living payments for those on means-tested benefits. What the Government will probably not remind us of is that hundreds of thousands of people are no longer entitled to the warm home discount since the Government excluded those who claim disability living allowance, personal independence payment and attendance allowance.

I find myself in the odd position of agreeing with the hon. Member for North Swindon (Justin Tomlinson) that we should abolish reassessments for conditions that we know will not improve or are deteriorating. I am interested in how the Minister will respond to that idea.

Among many others, Disability Rights UK has said that the support given to disabled people has barely touched the sides. Trussell Trust figures show that even in early 2020, 62% of working-age people referred to food banks were disabled. A Mencap survey has revealed that 35% of people with a learning disability have skipped meals to cut back on costs and 38% had not turned on their heating despite being cold. I could go on, but others have already stated the case very eloquently this morning, so I will finish by asking the Minister to commit to working closely with disabled people and disabled people’s organisations to find a sustainable solution to the crisis. As many have already said, they genuinely are the experts by experience.

It is a pleasure to serve under your chairmanship, Dr Huq. I thank you profusely for stepping in and taking on these proceedings to allow this important debate to go ahead.

I also thank the hon. Member for Motherwell and Wishaw (Marion Fellows), who is passionate about these issues. We have a constructive working relationship, and I always enjoy spending time with her and talking about the issues that are important to her constituents and people across Scotland. I continue to engage with her and am always willing to engage with colleagues from all parties on such matters. In that spirit, I thank Members for their contributions, which have covered a wide range of points. I will endeavour to address as many of them as possible, while making sure that the hon. Lady has the opportunity to sum up the debate.

I thank the many charities, both locally and nationally, that do so much good work supporting people, particularly those who are vulnerable or disabled. They do so in an effective way by working collaboratively with those individuals, often in difficult and challenging circumstances. Perhaps most importantly, charities make sure that there is awareness of the support that is available to people.

I want to make it clear at the outset that the Government recognise the difficulties that many households have experienced during this period. It has been incredibly difficult, and it is impossible for any Member of Parliament not to be acutely aware of that, given our constituency correspondence, and our conversations when we are out and about and in our surgeries. A lot of that is explained by high global gas prices—I think we all recognise the root causes—and the market volatility that has flowed as a result. That has undoubtedly had an impact on affordability for individual households. It has put a considerable strain on the cost of living, and I would argue that it explains why the Prime Minister is absolutely right to have set getting inflation down as one of the Government’s key missions.

One of the things that charities representing disabled people have been campaigning for is a social tariff for energy—the Minister was just talking about energy—to give disabled people, older people and carers who face high energy costs discounted energy bills. In January, I asked the Government what plans they had to introduce a social tariff for energy, and the Minister at the time replied:

“The Government has committed to work with consumer groups and industry to consider the best approach, including options such as social tariffs”.

Will the Minister please provide an update on that? Also, I urge him to have discussions with disabled people and the charities that represent them, as well as industry and consumer groups.

I am extremely grateful to the hon. Lady for her intervention. If I may, I will come to that point a little later, because I want to address the social tariff issue directly.

We understand and recognise that many households in the United Kingdom include vulnerable people who may be elderly or disabled, or who may have a medical condition. Often, that inevitably leads to higher energy costs. We are clear that everybody must be able to afford their energy usage, particularly to be able to power any machines and equipment that they might require. With that in mind, I would argue that the Government acted decisively and rapidly by putting in place a significant and comprehensive package of support to assist with the cost of living challenges. It is worth more than £94 billion in 2022-23 and 2023-24—an average of more than £3,300 per UK household. It is also important to note the 10.1% uplift to benefits across the board.

To reflect back on 2022-23, one of the vehicles through which we were able to deliver that support was the cost of living payments—the £1,100 payments for some households during the 2022-23 financial year. It was a remarkable achievement that, from the first announcement back in May last year to delivery, more than 30 million cost of living payments were paid last year. More than 8 million households received up to £650 across two payments; more than 8 million pensioner households received an additional £300, on top of their winter fuel payments; and 6 million people receiving an extra-costs benefit such as personal independence payment or adult disability payment in Scotland received a £150 disability cost of living payment.

Those payments came alongside a wider package of cost of living support, with the energy price guarantee capping fuel bills at £2,500 for average use, the £400 off domestic electricity bills that was received by every household in Great Britain, and then the council tax reductions for properties in bands A to D in England, as well as—this was an important part of the package, recognising that people’s circumstances are often not neat and that there is a risk that people fall between the cracks of the structured support—the household support fund, including funding in that envelope for the devolved Administrations. We extended that support twice, and the total has been £1.5 billion since October 2021.

I certainly feel that the household support fund has been a helpful vehicle for us to get support out to people by working with local authorities. I totally accept that we should look at what more we can do about awareness of it and getting the message out. Of course, many of our partners, such as Citizens Advice and advice services, are invaluable in helping the Department and local authorities to get the word out about it, but I would certainly be keen to look at any suggestions about what more colleagues think we can do about awareness, because it has been an effective means of getting help to people who require it.

I thank the Minister for giving way again; he is being extremely generous. He is talking about what else we could do. Will he recognise the erosion of advice centres for constituents? I am sure that many of us in this room are acutely aware that there has been an erosion of the provision of advice to people, and particularly to disabled people. Perhaps the Minister could speak to his colleagues about looking at funding such centres, because a lot of them came about through local authority funding, which has been squeezed to such a degree that there is no longer the same level of advice available in our communities as there should be.

I will certainly and gladly take that point back to the Department. I am sure it is something I can pick up on during the many engagement sessions that I have, particularly with disability charities and disabled people’s organisations. I would be keen to hear their views on how the issue is best approached and what more we can do in the advice space.

I want to touch on the cost of living support in place for 2023-24. Members will recall the commitments that my right hon. Friend the Chancellor of the Exchequer made in the autumn statement, including a firm commitment to support the most vulnerable people in our society. That will be delivered through 8 million low-income households getting £900 cost of living payments. I am delighted to say that my Department has already delivered 99% of the first cost of living payment of £301 to the 7.3 million households in receipt of a means-tested benefit such as universal credit. That in itself represents a £2.2 billion injection of help for households.

I am also pleased to confirm that we will shortly lay in Parliament regulations that will allow us to pay the additional £150 disability cost of living payment to 6.5 million people throughout the UK who receive an extra-costs disability benefit. Those payments will land in people’s bank accounts in the summer. We will also shortly lay regulations that mean that this winter pensioner households will again get an additional £300 on top of their annual winter fuel payment, as they did last year.

There has been a bit of a problem whereby some of the cost of living payments have excluded those who have previously been sanctioned by the UK Government. In essence, that means that people are doubly penalised. Will the Minister confirm that any regulations he introduces will not include any provision such that people will be doubly punished, if they have been sanctioned, by not receiving the cost of living payment?

I will gladly take that point back and speak to ministerial colleagues in the Department about that aspect. The hon. Gentleman will recognise that the Under-Secretary of State for Work and Pensions, my hon. Friend the Member for Mid Sussex (Mims Davies), has generally led on the legislative efforts to put this package in place, but I would be happy to raise that with her and to get him a proper, full, considered answer to that point.

Let me deal directly with one key issue that has come up in the debate: the structure of the cost of living payment and the argument that the payment is itself too low. I stress that the rationale is different for each of the cost of living payments. The Government’s view is that it is right that the highest amount goes to those on means-tested benefits, given that those on the lowest incomes are most vulnerable to rises in the cost of living. Having said that, we estimate that nearly 60% of individuals who receive an extra-costs disability benefit will receive additional support through the means-tested benefit payment. More than 85% will receive either or both of the means-tested and pensioner payments.

I assure colleagues that we are absolutely committed to ensuring that disabled people and people with health conditions receive the support that they need, which is why in 2022-23 we spent nearly £69 billion in real terms on benefits to support disabled people and those with health conditions. We will continue that throughout 2023-24 by uprating disability benefits in line with last September’s consumer prices index inflation figures. That means we expect to spend around £78 billion in 2023-24, which is 3.1% of GDP. That is a stark statistic. I recognise that Trident is a significant issue for the Scottish National party, and the figure of £3 billion was raised, but I and the UK Government would argue that there are strong reasons why we have a nuclear deterrent, which is a debate for another day.

The scale of support that we provide—to the tune of £78 billion in 2023-24—to people with disabilities and health conditions is significant. By 2027-28, total disability benefit spending is forecast to be more than £41 billion higher in real terms compared with 2010-11. Spending on extra-costs disability benefits alone will amount to £35 billion this year, all paid tax free, and in addition to any other financial or practical support that disabled individuals may receive.

The hon. Member for Chesham and Amersham (Sarah Green) asked about the adequacy of the disability cost of living payment and its evaluation. We are committed to an evaluation of the cost of living payments later this year. The disability unit is also working to build an evidence base to better understand and evidence the full impact of cost of living challenges for disabled people, across a range of sectors. It is trying to do that collaboratively and is drawing on the expertise, views and experiences out there to help us to shape that work.

Given that the Minister is committing to take some things away for further discussions with ministerial colleagues, may I repeat my plea in relation to carer’s allowance? It would help if we let carers work and at the same time keep their carer’s allowance.

I am happy and willing to keep that aspect of our policy under review to see whether there is more we can do to unlock that. That is a commitment I make to the hon. Lady; I am interested in looking at and exploring that further.

There were several references in the debate to energy costs, particularly in relation to the cost of equipment. The Government supported families across the UK last winter through the energy price guarantee, which places a limit on the price that households pay per unit of gas or electricity. Colleagues will know that that has been extended until the end of June at the £2,500 level, thereby ensuring that families will save on average around £160 per household throughout that period.

Existing support is also available through cold weather payments and the warm home discount. The property services register, which is run by energy suppliers, offers additional free services to people of pensionable age, who are registered disabled, who have a hearing or visual impairment, or who have long-term ill health. That register helps to ensure that people in vulnerable situations are able to access extra help when needed, such as when there is a power cut.

Let me talk about the situation moving forward. This is more a matter for colleagues in the Department for Energy Security and Net Zero but, of course, engagement on this issue goes on across Government. On the energy market reforms in the energy security plan released in March, which were touched on, the Government intend to consult on options for a new approach this summer. We will invite and welcome the public and our stakeholders to use the consultation to provide feedback on our proposals.

To directly respond to the hon. Member for Wirral West (Margaret Greenwood), I am keen that our work does involve engagement. I will assist in facilitating that with disabled people, their organisations and their representative bodies, to make sure that their views are heard, particularly in relation to the social tariff, for which there is a significant body of support. It is right that we look at that in detail as part of the wider reform package.

There is also significant Government help for energy insulation, ensuring that people are properly supported to better protect themselves from the cold and making homes as energy efficient as possible.

I will touch quickly on prepayment meters, which have been asked about. Ofgem published a new code of practice on 18 April, which has been agreed with energy suppliers, to improve protections for customers being moved to a prepayment meter involuntarily. We argue that that is a step in the right direction, providing better protections for vulnerable households. The code of practice, however, is not the end of the process. We have always been clear that action is needed to crack down on the practice of forcing people, especially the most vulnerable, on to prepayment meters. The Department for Energy Security and Net Zero will continue to work closely with Ofgem and industry to ensure that the code leads to positive changes for vulnerable customers, and will not hesitate to intervene again if necessary.

Finally, I will touch on the various contributions made on the personal independence payment. On appeals, 4% of all PIP decisions have been successful at appeal. I am not complacent, but I am pleased to say that the journey time for PIP is now down to 14 weeks. I want to stretch that and see if there is more that we can do to improve it. On assessments more generally, I want hon. Members to think about some of the opportunities that the White Paper presents. The tests and trials of the severe disability group have been touched on. Matching expert assessors is a positive thing to do to help ensure that we get more decisions right first time, and scrapping the work capability assessment also provides an opportunity to focus on quality. I have no doubt that we will have plenty of opportunities to say more about that, as well as on fluctuating conditions.

Thank you, Dr Huq, for stepping into the breach. I am confident that the Prime Minister and the Chancellor will continue to show leadership on these issues. We keep the package of support that we provide under constant review, and I have no doubt that this Government will continue to be on the side of working people, disabled people, pensioners and those in our society who are vulnerable, to ensure that they get through these challenging times.

I really do thank you, Dr Huq, more than anyone else in the Chamber. I thank all Members who have taken part. Most of all, however, I thank all our disability organisations and advisory services, which do such valuable work to help the most vulnerable people in our society—disabled people, their families and their carers.

How we treat our most vulnerable citizens is a political choice for any Government. Tinkering around the edges, which has been the pattern for this Government for a long while, is not what we should be doing. I commend the Minister for the work he has done, as I do his predecessor, with whom I also worked closely, but it takes more than a disabilities Minister to change things in this country. We need full support from the Government and the Treasury, and a change in how we think of disabled people and what we do for them. Politics is the art of the possible. More support is possible, and I can assure everyone here that I will continue to press for it.

Question put and agreed to.

Resolved,

That this House has considered the cost of living for people with disabilities.