PARLIAMENTARY DEBATE
Infected Blood Inquiry: Additional Report - 21 July 2025 (Commons/Commons Chamber)
Debate Detail
Before considering the detail of the report, I want to share the latest delivery figures from the Infected Blood Compensation Authority. As of 15 July, IBCA has contacted 2,215 people to begin their claim, and 1,934 have started the claim process; 808 offers have been made, to a total value of over £602 million; and 587 people have accepted their offer, and over £411 million has been paid in compensation. That means approximately 60% of infected people registered with a support scheme have been contacted to begin their claim.
I am pleased that progress is being made, but I acknowledge the calls from the community for faster payment. That is why the Government wrote to the Public Accounts Committee and the Public Administration and Constitutional Affairs Committee last month outlining the steps we are taking to remove administrative barriers to IBCA speeding up payments. I am also pleased to announce further interim payments of £210,000 to the estates of infected people who were registered to an infected blood support scheme and who have sadly passed away. That is in addition to the more than 500 interim payments that have already been paid, on which I will provide further information as soon as I am able to do so.
The Government are committed to providing fair compensation to victims of the infected blood scandal and in the autumn Budget we set aside £11.8 billion to do that. The inquiry has recognised the Government’s commitment, saying:
“There can be no doubt that the Government has done right in ways which powerfully signal its intent.”
However, I agree with Sir Brian’s statement that
“there is still more to be done to ensure that the detail and operation of the scheme matches up to its intent.”
Sir Brian has made a number of recommendations on ways the compensation scheme could be amended to achieve a scheme that works for everyone. We will publish an update on gov.uk today setting out the Government’s approach to the inquiry’s further recommendations. I will deposit a copy of that update in the Libraries of both Houses. We will also provide a comprehensive response to all the recommendations in due course.
The report includes several recommendations for IBCA on speed and transparency. I reiterate that the Government still expect IBCA to contact all registered infected people to begin a claim, and to open the service for affected people, by the end of this year. The announcements I am about to make do not change that position.
On Friday, Sir Robert Francis and David Foley confirmed that they will accept the recommendations that the inquiry made to IBCA. They have committed to working with the community to develop plans for designing and implementing those recommendations. IBCA will design and introduce a process for registration. It will also update its sequencing in line with the inquiry’s recommendation, noting that that will inform the order in which it opens up to cohorts this year. IBCA will introduce a process for prioritisation, recognising that community involvement is needed in tackling any uncertainty that may be introduced.
Alongside that, I have asked for a review of IBCA’s delivery of the scheme to ensure that it progresses as quickly as possible. That will be supported by the National Infrastructure and Service Transformation Authority and led by an independent reviewer. I expect the review to begin in August.
The inquiry has made recommendations across nine key areas to ensure that infected and affected people feel that they have overall been compensated fairly by a scheme that is designed and delivered with their input. Separate to the delivery of compensation by IBCA, the inquiry has made recommendations relating to the design and structure of the scheme. The Government will accept, and implement as soon as we can, seven of those sub-recommendations, so that IBCA can get on with paying compensation. Others will require engagement with the community before changes are made, in line with the spirit of the inquiry’s report.
When I gave evidence to the inquiry in May, I said that I would take a constructive approach and look at the issues that had been put to me. The inquiry has made eight sub-recommendations in those areas, and I am pleased to confirm to the House that I will either accept them or agree with the inquiry that the community should be consulted on next steps. I can confirm that we will remove the 1982 start date for HIV infection to ensure that anyone infected because of infected blood or infected blood products with HIV is eligible for the scheme regardless of the infection date.
We accept the inquiry’s recommendation on affected estates; in fact, I will go further than the recommendation. The inquiry recommended that if an eligible affected person has sadly died or dies between 21 May 2024 and 31 December 2029, their claim does not die with them but becomes part of the estate. I will extend that by a further two years until 31 December 2031.
The special category mechanism has been a concern for members of the community and for this House. Again, I promised the House that I would consider it, and I am pleased to say that we accept that change is needed to acknowledge the special category mechanism as part of the supplementary route severe health condition award. We will engage with the community on how best to realise those changes.
Another area that I committed to considering was the reinstatement of support payments to partners bereaved after 31 March 2025 until they have received compensation. Again, I accept that recommendation. I will ensure that those impacted will also be able to continue receiving those payments as part of their compensation package.
Unethical research is one of the most shocking aspects of this scandal. I can also confirm to the House that we will consult on revising the approach for the additional autonomy award on unethical research, including the scope and value of the award. A number of hon. Members have raised that with me.
The final area that I said I would consider was whether further supplementary routes for affected people could be introduced. The inquiry recommended that we consult to understand the feasibility of their implementation, alongside changes in the exceptional financial loss award. I agree with the inquiry that consideration should be given to those issues, and consideration rightly involves those impacted.
In addition, we are accepting further inquiry recommendations to remove the requirement for evidence of the date of diagnosis for hepatitis B or C, which we hope may allow claims for those mono-infected with hepatitis to be processed more quickly. By accepting those recommendations, we can start to implement the necessary changes as soon as possible.
There are several recommendations on areas in which changes to the scheme are needed. We intend to engage with the community on how best to achieve them. The inquiry is clear: people impacted by decisions need to be involved in them, and that is what we will seek to do before implementing the changes in the scheme. That includes acting on recommendations regarding compensation for the impacts of Interferon. We will introduce a new core route infection severity band for those who received Interferon treatment, and consult on the evidence requirements and threshold for a supplementary route award for severe psychological harm. Additionally, we will work with IBCA to introduce a mechanism that individuals can use to raise concerns to aid continuous improvement of the scheme.
As I am sure hon. Members understand, to do that the Government will need to make further regulations. Our top priority is to move quickly, so to make some of the simpler changes, we will bring forward a set of regulations as soon as parliamentary time allows. Those regulations will not implement all the policy changes recommended by the inquiry. In evidence to the inquiry in May, I said that I was open to changes that do not lead to further delays. I believe that making these changes recommended by the inquiry will not delay the speed at which offers are currently being made.
A further set of regulations will be needed to implement the more substantial changes, particularly those for which we are taking time to engage the community on how those updates can be realised. I therefore expect this second, more substantial set of regulations to be brought before Parliament in 2026, but—and I really emphasise this to hon. Members—we do not expect this engagement to cause delays to the roll-out of the compensation scheme as it currently stands, which is absolutely crucial, as I said to the inquiry. We are responding swiftly and constructively to Sir Brian, and putting the voices and needs of the community first.
I will also provide a further update on the Government’s response to the 2024 report. I have continued to engage with the charities named by the inquiry in recommendation 10. I recognise their concerns about the allocated funding, and can confirm that the Department for Health and Social Care is re-examining funding for this year and will look at options for the future.
With regard to recommendation 2 on memorialisation, I am pleased to announce that, following engagement with the community, Clive Smith has been appointed as chair of the memorial committee. I am delighted to be able to appoint a chair with his wealth of experience, and I am confident he will be able to bring the community together to make great progress on this work.
The Government have made progress in implementing the recommendations, but progress is never a foregone conclusion. Sir Brian is clear about the importance of scrutinising progress in delivering what the Government have committed to, and I agree. I am pleased to confirm that I have asked the Public Administration and Constitutional Affairs Committee to take on the role of scrutinising implementation of the inquiry’s recommendations in the May 2024 and July 2025 reports. It is for the Committee to outline how it will approach that work, but I trust that it will see fit to follow the example of the inquiry through scrutiny of the design and delivery of compensation.
In addition, today I am publishing a record of inquiry recommendations and the Government response on gov.uk, as promised in our response to the recommendation of the Grenfell Tower inquiry. Those records will be periodically updated to show implementation progress, and will include all recommendations of future inquiries.
To conclude, I quote directly from Sir Brian’s report, which he ends by stating:
“Truly involving people infected and affected in how the state recognises their losses would start to turn the page on the past.”
He is absolutely right. Our focus as we move forward must be on working together with the community, with IBCA, and indeed with each other in this House, not only to deliver justice to all those impacted, but, essentially, to restore trust in the state among people who have been let down too many times. I commend this statement to the House.
On behalf of His Majesty’s loyal Opposition, I thank Sir Brian Langstaff for his initial work on the inquiry and for all his follow-up work. This additional report, focusing on compensation, is a significant and thorough piece of work that has been done in good time. Our thanks also go to those working at the Infected Blood Compensation Authority to get the money out to those who desperately need it. I know that my right hon. Friend the Member for Basildon and Billericay (Mr Holden) welcomes the valuable insight that he gained from his recent visit to the team on the ground in Tyneside. Above all, we pay tribute to the victims, the families and the campaigners who have fought relentlessly and bravely on this issue.
I have previously raised in the House the concerns of victims and their families about the speed and structure of the compensation scheme. They have been repeatedly frustrated by a failure to speed up payments. Although there are signs that the pace is finally starting to increase, I know that their frustrations remain, and we share them. This scandal happened over decades, under successive Governments of different parties, but we all have a responsibility to do what we can to right the wrongs of the past as quickly as possible, and the Opposition will support the Government when they are doing the right thing in doing so.
I have also raised the issue of engagement and called on the Government to further solidify ongoing consultation and communication with victims and their families. It was disappointing to see that, as Sir Brian laid out in his additional report, sufficient progress has not yet been made on that. I welcome the Government’s response on that matter, but I urge them to ensure that that engagement work is carried out rapidly and urgently. Victims and their families deserve real action and, as the additional report makes clear, they have had far too many assurances but not yet enough substantial engagement.
I am pleased that the Government are now taking action on some of the issues relating to atypical personal or health impacts and supplementary routes, which I raised when we discussed the infected blood compensation scheme regulations in March. I know that will bring great comfort to many of those who have been infected with the diseases mentioned.
I appreciate that the Government are taking forward Sir Brian’s recommendation on a grievances mechanism, and I am certain that across this House we all hope that implementation of this recommendation and the others from the report will meet the terms of reference of Sir Brian’s inquiry and will complete the compensation and resolution process. However, the Government must ensure that this mechanism is an active one, not simply a recording device. While it is incredibly important that lessons are continuously learned from this tragedy, it is also really important that those cases that contain difficulties with regard to compensation eligibility—which we know make up a significant proportion—are addressed as a matter of urgency, and that all such cases, many of which will probably come through this new mechanism, are considered carefully, and that all information on the claim status and decisions made on it are communicated clearly and frequently to the complainant.
Above all, learning those lessons must not come at the cost of delaying payments to those who simply cannot afford to wait any longer. To that end, I would appreciate the Minister’s clarity on the number of personnel whom he expects to be tasked with the grievances mechanism and the oversight structure that will be put in place over it. Will that be the advisory board being established and, if so, what specific oversight powers will the advisory board have?
We support the Government in taking these measures forward, and we will do what we can as the official Opposition to help these actions be implemented, but it is incredibly important that the Government are clear to this House what measures they are putting in place to ensure that the steps announced here today are carried through and enacted efficiently and effectively. No amount of money can undo the harm that was tragically inflicted on so many, but a comprehensive and effective compensation scheme can offer a lifeline to victims and their families who have suffered far too much for far too long.
On the speed of payments, the hon. Gentleman referred to the number of payments and of course IBCA has used the “test and learn” approach, but I want to tell the House that I have announced today a substantial number of changes to this scheme, but it has to be on the basis that that will not affect the current speed of roll-out of payments. That is why I still expect IBCA to contact all registered infected people to begin a claim before the end of the year, and indeed to open the service to affected people by the end of the year.
I also agree with the hon. Gentleman about the need for an active consultation mechanism, and I entirely agree about clarity of communication. I very much hope that we can continue this cross-party spirit into the delivery phase as that is so important.
Liberal Democrats know that the victims of the infected blood scandal deserve compensation. They and their families have been mistreated and have been waiting for decades to see justice. We welcomed the establishment of this scheme in August 2024 and the commitment shown by Governments from both sides of the House to justice for these victims.
However, Sir Brian Langstaff’s additional report has been excoriating about the glacial pace of payments and the abject failure to listen to victims. One of the report’s most scathing findings stated that victims of the scandal had “not been listened to”. As Sir Brian has reported, the experts who were responsible for the design of the compensation scheme were forbidden to talk with victims and their families. After so many years of secrecy, deceit and delays, excluding victims and their families was wholly unacceptable.
This report has been welcomed by many victims, including many of the 122 haemophiliac boys who attended the Lord Mayor Treloar college in Hampshire. My hon. Friend the Member for Eastleigh (Liz Jarvis) has been a powerful advocate for these victims, and I thank her for her work advocating for constituents such as Gary, who welcomed the findings of this report. That is why we are urging the Government to set out clearly and in detail the timelines for delivering compensation. We are calling on the Government to engage properly with victims and their families. Does the Minister agree that it is entirely unacceptable that victims were not involved in the original design of the scheme and that they had been consistently ignored? When can victims of the scandal expect the implementation of Sir Brian Langstaff’s recommendation to introduce a formal advisory body of victims for the Infected Blood Compensation Authority?
The hon. Lady is also absolutely right about how essential it is to put the voice of victims at the heart of what we are doing, but I would also say to the House, in relation to today, that at the autumn Budget last year the Chancellor set aside £11.8 billion of funding to the end of the Parliament to pay compensation for victims, and the policy decisions that I am announcing today are currently estimated to cost around £1 billion in further compensation payments. The total cost depends on what is agreed following consultation with the community, but the Government have said—and we will stand by this—that we will pay what it takes to fund the scheme, and we will update the forecast costs at the autumn Budget of 2025. But victims should be in no doubt of the Government’s determination to seek justice.
“This disaster was not an accident”.
Institutional reputation was put above truth and ordinary people paid the price. It is far from alone—there is Horizon, nuclear test veterans, Grenfell and Hillsborough. A Hillsborough law would end the culture of cover-up, which is why victims and families, including those from the infected blood scandal, fully support it. The Prime Minister promised that one of his first acts would be to introduce that legislation, but one year on we are still waiting. Does the Minister recognise the importance of fulfilling that pledge before Labour returns to Liverpool for the party conference in September?
“For decades people who suffered because of infected blood have not been listened to. Once again decisions have been made behind closed doors leading to obvious injustices.”
My right hon. Friend said that he will accept most of the recommendations, but if he is going to consult, he must consult with the community. Will he guarantee that he will set up a proper mechanism that will be approved by the community, and that he will provide financial support to those organisations that are giving advice to victims who are making claims?
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