PARLIAMENTARY DEBATE
Terminally Ill Adults (End of Life) Bill (Ninth sitting) - 11 February 2025 (Commons/Public Bill Committees)
Debate Detail
Chair(s) Peter Dowd, Clive Efford, † Sir Roger Gale, Carolyn Harris, Esther McVey
Members† Abbott, Jack (Ipswich) (Lab/Co-op)
† Atkinson, Lewis (Sunderland Central) (Lab)
† Campbell, Juliet (Broxtowe) (Lab)
† Charalambous, Bambos (Southgate and Wood Green) (Lab)
† Francis, Daniel (Bexleyheath and Crayford) (Lab)
† Gordon, Tom (Harrogate and Knaresborough) (LD)
† Green, Sarah (Chesham and Amersham) (LD)
† Hopkins, Rachel (Luton South and South Bedfordshire) (Lab)
† Joseph, Sojan (Ashford) (Lab)
† Kinnock, Stephen (Minister for Care)
† Kruger, Danny (East Wiltshire) (Con)
† Leadbeater, Kim (Spen Valley) (Lab)
† Malthouse, Kit (North West Hampshire) (Con)
† Olney, Sarah (Richmond Park) (LD)
† Opher, Dr Simon (Stroud) (Lab)
† Paul, Rebecca (Reigate) (Con)
† Richards, Jake (Rother Valley) (Lab)
† Sackman, Sarah (Minister of State, Ministry of Justice)
† Saville Roberts, Liz (Dwyfor Meirionnydd) (PC)
† Shah, Naz (Bradford West) (Lab)
† Shastri-Hurst, Dr Neil (Solihull West and Shirley) (Con)
† Tidball, Dr Marie (Penistone and Stocksbridge) (Lab)
† Woodcock, Sean (Banbury) (Lab)
ClerksLynn Gardner, Lucinda Maer, Jonathan Whiffing, Committee Clerks
† attended the Committee
Public Bill CommitteeTuesday 11 February 2025
(Afternoon)
[Sir Roger Gale in the Chair]
Terminally Ill Adults (End of Life) BillAmendment proposed (this day): 34, in clause 1, page 1, line 4, leave out “capacity” and insert “ability”.—(Sarah Olney.)
Question again proposed, That the amendment be made.
I remind the Committee that with amendment 34 we are discussing the following:
Amendment 36, in clause 7, page 4, line 7, leave out “capacity” and insert “the ability”.
This amendment is consequential on Amendment 34 and NC1.
Amendment 37, in clause 8, page 4, line 34, leave out “capacity” and insert “the ability”.
This amendment is consequential on Amendment 34 and NC1.
Amendment 38, in clause 9, page 6, line 27, leave out “capacity” and insert “ability”.
This amendment is consequential on Amendment 34 and NC1.
Amendment 202, in clause 9, page 6, line 31, leave out “capability” and insert “capacity”.
This amendment corrects a typographical error.
Amendment 39, in clause 9, page 6, line 31, leave out “capability” and insert “ability”.
This amendment is consequential on Amendment 34 and NC1.
Amendment 40, in clause 12, page 8, line 2, leave out “capacity” and insert “the ability”.
This amendment is consequential on Amendment 34 and NC1.
Amendment 41, in clause 13, page 9, line 31, leave out “capacity” and insert “ability”.
This amendment is consequential on Amendment 34 and NC1.
Amendment 42, in clause 18, page 12, line 23, leave out “capacity” and insert “the ability”.
This amendment is consequential on Amendment 34 and NC1.
Amendment 43, in clause 30, page 18, line 16, leave out “capacity” and insert “the ability”.
This amendment is consequential on Amendment 34 and NC1.
Amendment 44, in clause 40, page 23, line 26, leave out from “capacity” and insert “ability”.
This amendment is consequential on Amendment 34 and NC1.
New clause 1—Ability to make decision—
“The person is to be considered as having the ability to make a decision to request assistance to end their life if they can fully understand, use and weigh the relevant information in accordance with regulations made by the Secretary of State under affirmative resolution.”
This new clause defines the concept of ability which is intended to replace the concept of capacity. This new clause is intended to replace Clause 3.
Amendment 45, in schedule 2, page 26, line 36, leave out “capacity” and insert
“the ability to make a decision”.
Amendment 46, in schedule 3, page 28, line 1, leave out “capacity” and insert
“the ability to make a decision”.
Amendment 47, in schedule 5, page 30, line 14, leave out “capacity” and insert
“the ability to make a decision”.
I reference that because my whole point is that the Bill does not use the Mental Capacity Act; it just uses the definition of capacity that is in it, and that definition is very weak. It is designed to assume capacity in the patient and, as we discussed earlier today, it can include somebody who has impaired judgment—they could be depressed or even suicidal. Indeed, my hon. Friend the Member for Solihull West and Shirley said earlier, very honestly, that he would be content with somebody who had depression accessing assisted suicide, as would be possible under the legislation.
The point is that once the test of capacity has been passed, there is no best interests consideration. It is a great abuse of the Mental Capacity Act, the whole purpose of which is concern for the vulnerable, for that purpose to be ignored once the usefulness of the Act has been fulfilled. This Bill does violence to the Mental Capacity Act in using it for this purpose. The fact is that that Act was designed for the opposite situation: to protect people from having things done to them.
I will conclude shortly, Sir Roger, but that brings me to the point we have discussed at length already today: the crucial question of whether the decision to have an assisted death is different from the decision to decline or to cease treatment. I start by pointing out that case law specifies that to decline treatment is not to commit suicide —I recognise that the hon. Member for Spen Valley does not like the term suicide, and I apologise, but we are using legal terms here. The fact is that there is a distinction in law between the act of suicide and the decision to decline treatment.
I refer in particular to the famous case of Airedale NHS Trust v. Bland in 1993, and quote Lord Goff, of the House of Lords, who said that
“in cases of this kind, there is no question of the patient having committed suicide, nor therefore of the doctor having aided or abetted him in doing so. It is simply that the patient has, as he is entitled to do, declined to consent to treatment which might or would have the effect of prolonging his life, and the doctor has, in accordance with his duty, complied with his patient’s wishes.”
I also quote Sir Thomas Bingham, as he then was, who said that in the case of Tony Bland it was plainly not suicide, and that
“it was not the discontinuance of artificial feeding but the patient’s condition and its underlying cause which caused his death”.
In the withdrawal of treatment, it is not the act of withdrawing treatment that kills someone, but their disease, or the condition they have, whereas in assisted suicide it is the act that kills them. That is a crucial distinction, and that distinction is apparent. We heard it this morning in remarks from my hon. Friend the Member for Solihull West and Shirley and my right hon. Friend the Member for North West Hampshire, and I think from the hon. Member for Spen Valley, who pointed out that there is a difference between the two cases, as is evident with respect to advanced directives that allow for the withdrawal of treatment. They do not allow for the active administration of treatment; they allow for the withdrawal of treatment. They would not allow for assisted dying, as the hon. Member for Luton South and South Bedfordshire accurately said.
This goes to the heart of the matter. There is a difference between being left alone and demanding that something is done to us. The state protects our right to be left alone. It does not yet give us the right to have something done to us simply because we asked for it.
I realise we are dealing with semantics here. We might have an irreconcilable difference about such an act, but I have to say that from the point of view of a patient—the person approaching their death—those two acts seem to be broadly the same. In both circumstances I am requesting that a doctor do something to hasten my death, because I do not wish to continue living in the circumstances presented to me.
The hon. Member is absolutely right to say that it gets to the heart of the issue. I think dying people should be given that choice. In the same way that they are given the choice to have treatment withdrawn or the machine turned off, they should be given the choice to take control and to have the autonomy and dignity that assisted death will provide.
The hon. Lady is right, and that is what she is trying to do: she simply wants the Bill to go through. I take strong issue with her implied point that our purpose here is simply to work out the Bill’s implementation. We are looking at each clause, line by line, to decide whether it is safe or not. As she said herself at the time, the decision on Second Reading was a vote in principle to continue the discussion, which is what we are doing now. We are closely and minutely examining whether every clause is safe.
On the surface, those reasons seem reasonable, and it is an easy option. However, if the MCA does not meet the threshold of meeting the needs of everyone, convenience should not be the deciding factor. Convenience cannot be considered as a sufficient reason to use the MCA as a fundamental element of the Bill. The assisted dying Bill in itself is enough reason to have an alternative measure to determine an individual’s eligibility to be considered for assisted dying.
Let me conclude my point about the difference between assisted dying and the withdrawing of treatment. To decline treatment is to assent to nature; it is to let one’s body do what it will. To commit suicide is to contradict nature; it is to do something to one’s body that interrupts its own plans. I recognise that the outcome is the same —it is death—but we are considering the process of decision making in the clause, and the decision is fundamentally different.
I recognise—I think the hon. Member for Spen Valley would accept this—that we have been forced into this entirely sub-optimal step of proposing the amendment and new clause 1 as an alternative approach that would give the Government the power to define the terms at a later stage. The fact is that we are confronting the inadequacies of this process, with the policymaking and exploration that should have been done at the outset having to be done as we go through the Bill. I deeply regret that, but I hope the Committee will agree that it is a simple and better step to agree to a bespoke ability test rather than rely on the Mental Capacity Act which, as the hon. Member for Broxtowe said, was never designed for this purpose.
If anybody else wishes to speak, please indicate in the normal fashion by rising. I will call the hon. Member for Broxtowe if she wishes to speak, but I need to know whether she wants to. If she stands up at the right time, that will be fine. Please be aware that once I have called the mover of the amendment to wind up, there will be no further debate on the subject. That really will be the end of the debate.
The key word here is “capacity”. There has been much debate around the Mental Capacity Act. I will go back to the oral evidence we heard, as well as the written evidence and submissions in relation to the amendments and the clause. The psychiatrists who have advised are against it. I appreciate and recognise the contributions from my hon. Friends the Members for Penistone and Stocksbridge and for Bexleyheath and Crayford, who spoke eloquently about the word “ability” from his experience. I recognise that we have not had the opportunity to test the concept of ability.
We have had lots of evidence when it comes to capacity, and I will go back to some of the key points. The Royal College of Psychiatrists stated explicitly that the Mental Capacity Act is
“not sufficient for the purposes of this Bill.”
Explaining why, the Royal College of Psychiatrists said that assessing the capacity to end one’s life is “entirely different” from assessing for the capacity to decide treatment.
Three psychiatrists who gave evidence to the Committee —Professor Allan House, Dr Annabel Price and Professor Gareth Owen—all expressed doubts about the use of the Mental Capacity Act to assess whether a person was in a fit state of mind to undertake assisted dying. When Professor Allan House was asked why some people might choose assisted dying, he said they are vulnerable. When asked what he meant by that, he said:
“They are not people asserting autonomy and pleasure in their ability to make a choice; they are people describing to you things that are negative influences on their life.”––[Official Report, Terminally Ill Adults (End of Life) Public Bill Committee, 29 January 2025; c. 161, Q202.]
Professor Gareth Owen said:
“I have looked at mental capacity a lot in research, and there is no experience of the decision to end one’s own life. It is outside the experience of the Mental Capacity Act, the Court of Protection, the associated research and practitioners on the ground. The reference to the Mental Capacity Act in clause 3 puts you into an area where there is no experience of the central capacity question under consideration. It is very important that Parliament be clear-eyed about that.”––[Official Report, Terminally Ill Adults (End of Life) Public Bill Committee, 30 January 2025; c. 226, Q287.]
Professor Owen also said:
“I have had over 20 years of research interest in mental capacity. When I look at the issues relating to mental capacity with the Bill…the other important point to understand is that they are very novel. We are in uncharted territory with respect to mental capacity, which is very much at the hub of the Bill.” ––[Official Report, Terminally Ill Adults (End of Life) Public Bill Committee, 30 January 2025; c. 226, Q286.]
Like my hon. Friend the Member for Bexleyheath and Crayford, I am certainly not a doctor, although I have experience in the NHS, but I do know that we do not have psychiatric experts or experts on capacity in this Committee.
“is not sufficient for the purposes of this Bill”.
In oral evidence, Professor Jamilla Hussain, an expert in palliative care and health inequalities, highlighted an inequity in assessment using the Mental Capacity Act. She said that she does not think that
“the Mental Capacity Act and safeguarding training are fit for purpose. For something like assisted dying, we need a higher bar—we need to reduce the variability in practice.” ––[Official Report, Terminally Ill Adults (End of Life) Public Bill Committee, 29 January 2025; c. 199, Q260.]
My hon. Friend the Member for Penistone and Stocksbridge mentioned the process in the Bill being repeated eight times, but I want to bring us back to the issue of capacity in relation to coercion. The Royal College of Psychiatrists said:
“In any assessment of capacity, we must also consider whether a person is making the request because they consider that they are a burden or because they do not consider that they have access to effective treatments or good-quality palliative care. At a population level, palliative care, social care and mental health service provision may impact the demand”
for an assisted dying service. Although I appreciate that we will debate this in greater detail later, on clauses relating to coercion, it relates to the issue of capacity. In her evidence to the Committee, Chelsea Roff, a specialist in eating disorders, said:
“One thing I would like to highlight in our study is that all 60 people who died”
by assisted dying after suffering from anorexia, who were mostly young women,
“were found to have mental capacity to make the decision to end their life, so I worry that mental capacity will not be an effective safeguard to prevent people with eating disorders from qualifying under the Bill.
I also note that Oregon and California, where I am from and where we have found cases, have an additional safeguard to mental capacity. That is, if there are any indications that the person might have a mental disorder, that person must be referred for a mental health assessment.” ––[Official Report, Terminally Ill Adults (End of Life) Public Bill Committee, 29 January 2025; c. 141, Q177.]
Coercion does come into the issue of capacity. We are looking at the Mental Capacity Act, which was introduced in 2005 and is 20 years old. These conversations were not being had in Parliament at that time; the vocabulary did not include “coercion” or “undue influence”, even at the time the Mental Capacity Act was passed by this House. Again, that speaks to my point: are we really saying that we want to test the Mental Capacity Act on something that has never been done before?
To follow the basic premise of my hon. Friend’s argument, she is saying that the Mental Capacity Act is not tried and tested for what we are discussing. However, by definition, neither is this amendment; if anything, it is even worse, because words such as “ability”, which we are discussing here, have absolutely no basis, as was admitted by the hon. Member for East Wiltshire. On that basic premise, my hon. Friend will not agree with any amendment that is tabled today, because none of them is tried and tested. Is that correct?
As my hon. Friend the Member for Spen Valley, the promoter of the Bill, clearly stated, this is about strengthening the Bill and bringing the best Bill to Parliament to give people a choice. That is what this is about.
On resuming—
Does the hon. Lady agree that the Bill would take a great leap in the dark by legalising assisted dying? At the moment, that leap lands on the uneven ground of the Mental Capacity Act. Does she agree that, if we want to do this properly, we should prepare a solid, cushioned, safe landing space that is appropriate for the Bill, rather than the inappropriate mess that the Mental Capacity Act would induce?
I am grateful for the interventions from my hon. Friends the Members for Rother Valley and for Ipswich. There are a couple of things that are important for us to understand. The Mental Capacity Act has not been tried in any of the other jurisdictions across the world on which we are basing this law, so we cannot make a comparison.
On the issue of whether it is either/or—whether it is the Mental Capacity Act or the word “ability”—the Secretary of State has the power to change that. If we are to be true to the spirit in which we have come to this debate to make the Bill as safe as possible, given that so many psychiatrists and experts have said that they are not convinced that the Mental Capacity Act is fit for purpose in this regard, surely it is incumbent on us to make that case.
My hon. Friend the Member for Ipswich makes a valid point. He asks whether I would, by that definition, support this amendment. I support it because it has led to a debate that we have had all morning, and that we are carrying on into the afternoon. As it is, the Bill does not give me confidence, whether it is due to the use of the Mental Capacity Act or the definition of “ability”. I feel that it needs to go much further, perhaps through the Secretary of State tabling another amendment at a later point.
“it is often the case that they are…poorly conducted.”––[Official Report, Terminally Ill Adults (End of Life) Public Bill Committee, 28 January 2025; c. 71, Q85.]
Would my hon. Friend agree that rather than use the Mental Capacity Act, the “ability” amendment tabled by the hon. Member for Richmond Park would be more suitable and make the Bill safer?
We will be debating later in Committee the information that is given to a person to form that decision, but I do not think it is quite the case that the psychiatrist said that it could not be or was not fit for purpose. Actually, they said that it may well be sufficient if we equate those two decisions—and many of us do.
“We are in uncharted territory with respect to mental capacity, which is very much at the hub of the Bill”––[Official Report, Terminally Ill Adults (End of Life) Public Bill Committee, 30 January 2025; c. 226, Q286.]
and there is an inequity in assessment using the Mental Capacity Act. There were other categorical statements made—there was no “maybe” in there. For me, a “maybe” does not cut it at this level; the test should be much higher in order to take the option of assisted death.
“You are equating a refusal of treatment, in capacity terms, to hastening death by assisted dying. If those two things are equated, in terms of the gravity and the quality of the decision, the Mental Capacity Act may well be sufficient, but there are differences. There are differences in the information that the person would need and what they would need to understand.”––[Official Report, Terminally Ill Adults (End of Life) Public Bill Committee, 30 January 2025; c. 277, Q361.]
It is clear what Dr Price said. To be honest, the question was partly prompted as we had become a little confused, because the whole practice of psychiatry in the UK is founded on the Act at the moment. She seemed to be implying that somehow the entire practice of psychiatry in the UK was on unstable ground—and I do not think anybody is claiming that.
Crucially, I do not believe that the Royal College does equate the gravity of the two cases. Its written evidence states that while
“a person’s capacity to decide treatment can be reliably assessed, an assessment of a person’s mental capacity to decide to end their own life is an entirely different and more complex determination requiring a higher level of understanding.”
It regards the two cases as different in principle and therefore requiring different tests.
We have heard a lot about the equivalence of endings versus decisions. The example given earlier, of somebody pulling the plug because they did not want treatment any more, happens in very few cases. From my experience of working in the NHS and with disabled people, when people are at the end of life, their cases sometimes do end up in court in front of a judge. That may be because there is a difference of opinion—be it medical, between the family, to do with capacity, or whatever the issue is. We are removing that. My understanding is that the promoter of the Bill is removing the need for the judge and is proposing a panel, which is what I read in The Guardian earlier.
On the surface, those reasons do seem reasonable and make the Mental Capacity Act an easy option. If, however, the Act does not pass the threshold of meeting everyone’s needs, convenience should not be the deciding factor. Convenience cannot be considered a sufficient reason to use the Mental Capacity Act, as it is a fundamental element of the Bill. The Bill is in itself enough reason to have an alternative or stand-alone approach to determine an individual’s eligibility to be considered for an assisted death.
Capacity is a complicated issue and cannot be oversimplified for convenience. The MCA may be fit for its current purpose, but it is not fit for the purpose of the assisted dying Bill. I have spent more than 20 years working on the equalities agenda, and one of the things that I have learned—this has been a consistent shortfall—is that we try to address new challenges with old solutions, rather than trying to meet the needs of the people we intend to serve. That is the reason why I will be supporting the amendment.
“references to a person having capacity are to be read in accordance with the Mental Capacity Act 2005”,
with sections 1 to 3 of that Act establishing the principles and criteria for assessing a person’s capacity to make decisions. New clause 1, which would replace clause 3, and amendments 34 to 47, would collectively introduce the concept of an individual having the ability to make the decision to request assistance to end their life. A person’s ability would be determined by whether they could
“fully understand, use and weigh the relevant information in accordance with regulations made by the Secretary of State”.
That is intended to replace the term “capacity”, used in the Mental Capacity Act 2005, which provides a very specific definition of what it means to lack capacity in relation to a particular decision. A lack of capacity under this framework means that a person must be unable to understand, use and weigh information relevant to the decision, and that that must be directly caused by
“an impairment of, or a disturbance in the functioning of, the mind or brain.”
The “ability” proposal, as drafted, deals only with the use and weight of information.
Also, we have not discussed principle 2 in chapter 2, which says that the doctor has to do everything practicable to try to help the person to make the decision for themselves, before concluding that they do not have the capacity to do so. The principal concern for some Members remains those issues in relation to the Mental Capacity Act, which have not been considered for this scenario. I would like the Minister to address them and the fact that that Act, which was written 20 years ago, was not written for this scenario.
Personally, I am agnostic as to which of those it is. It is simply a question of what works best given the highly integrated nature of the conversation because the criminal justice aspects of it are a reserved competence, while health and care are a devolved competence. What is the best way to present that—having a single document or two separate documents? I am not entirely clear, but I have undertaken to check the matter with officials. I will get back to the right hon. Lady as soon as possible on that point.
That brings me to my second point of confusion: I simply do not understand what on earth the Minister means when he says that he is neutral about the clauses. He has just given the view, from his position, that he objects to the amendment and that he supports the use of the Mental Capacity Act. He is basing his view— I had understood that, as a neutral member of the Committee, he was not going to express one—on something. What is he basing it on? Secondly, how can he express a view when he is supposed to be neutral?
I also gently point out to the hon. Member for East Wiltshire that this is not a Government Bill; it is a private Member’s Bill. It is also worth noting that it is unprecedented, as far as I know, to have oral evidence sessions for a private Member’s Bill, so we are already on relatively uncharted territory. It is also relatively uncharted territory to have, on a Bill Committee, Ministers who are neutral because the position of the Government is neutral. But that reflects the fact that this is indeed uncharted territory, so that is where we stand.
The hon. Gentleman made a point about our own positions on the subject; I speak also for the Minister of State, Ministry of Justice, my hon. and learned Friend the Member for Finchley and Golders Green. It is a matter of public record that I supported the Bill on Second Reading. It is also the case that we vote, as members of the Committee, on the basis of our conscience because this is a matter of conscience; that is why the Government are neutral on it. There is no whipping from the usual channels.
At the same time, we are articulating the position of the Government. The hon. Member for East Wiltshire asked how we come to that position. It is through the usual process of engaging with officials and experts in the field, and through taking into account all the considerations that the Government need to take into account for the operationalisation of the Bill. The Government then come to a view, and that is the view that I express when I am on the Committee.
On the point about the established legal framework, which clinicians have been applying since 2007, “capacity” would still be used for other decisions about care and treatment.
I turn to amendment 202, tabled by my hon. Friend the Member for Spen Valley on the advice of the Government. It ensures that the assessment of “capacity” is utilised by the assessing doctor, and corrects a typographical error in clause 9 to ensure that an assessment of capacity will apply consistently throughout the Bill. As I said earlier, how and whether the law on assisted dying should change is a matter for this Committee and for Parliament as a whole. However, I hope that these observations are helpful to the Committee when considering potential changes put forward.
I will do the quick and easy bit first. As the Minister has just said, amendment 202 is to correct a typographical error in the initial drafting of the Bill—despite the high level of expertise involved in the initial drafting of the Bill, that one managed to sneak through. The amendment would simply change the word “capability” to “capacity”, to be consistent with the rest of the Bill.
I now come to amendments 34 to 47 and new clause 1. As we have discussed, those would replace the concept of “capacity”, which is based on the Mental Capacity Act, with a new concept of “ability”. I think that suggestion is coming from a good place and is made with good intention by the hon. Member for Richmond Park; I thank her for her positive engagement with the Bill. However, based on the oral evidence that we received, particularly from the chief medical officer and many other experts, the suggestion would seem unnecessary given that we already have—as has been discussed at length this afternoon—a very well established piece of legislation that is effective in this regard.
The primary purpose of the Mental Capacity Act is to promote and safeguard decision making within a legal framework. As the CMO and other colleagues have said, issues around mental capacity
“are dealt with every day, in every hospital up and down the country; every doctor and nurse above a certain level of seniority should be able to do that normally.”––[Official Report, Terminally Ill Adults (End of Life) Public Bill Committee, 28 January 2025; c. 30, Q3.]
That view was supported by Yogi Amin, an expert in Court of Protection work, human rights and civil liberties, who told us during the oral evidence sessions:
“It is well understood how capacity assessments are done, and it is ingrained”––[Official Report, Terminally Ill Adults (End of Life) Public Bill Committee, 29 January 2025; c. 140, Q176.]
What this debate is fundamentally about is that assisted dying is not done every day. It is not something doctors are used to. As somebody who has said that she wants the toughest safeguards, it is incumbent on my hon. Friend the Member for Spen Valley to understand that what those of us who have concerns about the Bill are saying is that this is unusual. It is a step into the dark.
The amendment tabled by the hon. Member for Richmond Park is about making sure that the issue is not just about what doctors are used to, but that there is another safeguard to ensure that people are not being exploited. Does my hon. Friend understand that?
“It is interesting that a number of Members of Parliament who are practising physicians pointed out in the debate that they have to evaluate freedom of decision making and absence of coercion in many different medical contexts.”
She talked about the withdrawal of medical treatment, as others have this afternoon, and went on:
“It is considered to be a fundamental human right that lies at the heart of medical law that a patient has personal autonomy to decide what to do with their body and whether or not to accept medical treatment, provided that they have the capacity to do so...Doctors have to make those assessments all the time.”––[Official Report, Terminally Ill Adults (End of Life) Public Bill Committee, 30 January 2025; c. 227, Q289.]
In the light of that evidence, it would seem unnecessary to create a whole new legal framework around the new concept of ability.
However, although I think the Mental Capacity Act is the correct legal framework to use, I strongly agree with palliative care doctor Rachel Clarke when it comes to additional training on assessing capacity for the purposes of this Bill, which relates to the point made by my hon. Friend the Member for Banbury. She strongly encouraged us to give serious consideration to this matter, saying:
“If there is one thing that I would say to the Committee regarding making the Bill as robust, strong and safe as possible, it is: please consider seriously the matter of education and training from day one of medical school onwards.”––[Official Report, Terminally Ill Adults (End of Life) Public Bill Committee, 28 January 2025; c. 71, Q85.]
The CMO also suggested that training on capacity, as has been discussed, may require some slight adjustment. He said:
“There is an absolute expectation within the Act, for example, that the more serious the decision, the greater the level of capacity that someone needs to have...That training should be generic, but may need some adaption.”––[Official Report, Terminally Ill Adults (End of Life) Public Bill Committee, 28 January 2025; c. 30-31, Q3.]
I agree. As I have said, I think one of the best things about the Bill is the opportunity it gives us to develop gold-standard training around end-of-life care, end-of-life conversations and choice for terminally ill people. That should include training in assessing capacity specifically for the purposes of the Bill, for a decision that is clearly of such a high level of consequence and seriousness.
“If it is practical and appropriate to do so, consult other people for their views about the person’s best interests”.
However, it does not say “must”, and for adults with learning disabilities particularly, that remains a principal concern. Chapter 2 of the code of practice says:
“It is important to do everything practical...to help a person make a decision for themselves before concluding that they lack capacity to do so.”
I know this is not my hon. Friend’s intention, but that is the wording that would lead a doctor to have to help somebody make this decision. My question is: how will we overcome that issue?
I come back to training. Although the full details of the training programme that would accompany the Bill cannot be put on the face of the Bill, I have discussed the issue at length with officials in the Department of Health and I have included amendments to that effect. Amendments 186 and 198 specifically state that training must include assessing capacity and assessing whether a person has been coerced or pressured by any other person. Further comprehensive training will be included in regulations set out by the Secretary of State, and the chief medical officer is confident that that is the correct way to proceed.
Furthermore, as has been referred to, there are multiple opportunities within the process to assess capacity by a range of professionals. I have also tabled new clause 8, which would create a duty for the Secretary of State to consult before making regulations relating to training. Within that, there would be a duty to consult not only the Equality and Human Rights Commission, which is important, but persons with expertise in matters relating to whether persons have capacity and whether persons have been coerced.
There was not a consensus among those who gave oral or written evidence that the Mental Capacity Act is a sufficient safeguard for the purpose proposed in the Bill. I am grateful to the hon. Member for Bexleyheath and Crayford for his speech this morning, which illustrated vividly for all of us how the Mental Capacity Act is used in practice. I particularly thank him for his personal reflection.
Let me reiterate what the amendment seeks. The Bill proposes to judge mental capacity for a decision to request assisted dying in relation to the Mental Capacity Act 2005. There are elements of the Mental Capacity Act that are tried and tested, and should be retained in assessments of capacity in relation to this legislation, but as per the written evidence of the Royal College of Psychiatrists, the Mental Capacity Act is not sufficient for the purposes of assisted dying, because it cannot distinguish between those who suffer from a mental disorder and those who do not. It needs to be adapted for the purposes of the Bill.
My amendment 34 would therefore substitute “capacity” with “ability” and reserve to the Secretary of State the power to define ability for the purposes of the Bill. To me, that is a pragmatic response. The debate in the Committee Room today reflects the lack of consensus among the experts who gave witness. That is why I think the matter is better resolved by those experts giving advice to the Secretary of the State, so the definition of ability can be expertly decided on.
The difference between choosing assisting dying and choosing to end treatment was a big topic of debate both this morning and this afternoon. It goes to the heart of the different approaches that people take towards the Bill. I support the observation from the hon. Member for East Wiltshire that the difference is between dying of an illness itself, or dying of the effects of the approved substance, as laid out in the Bill. To me, that is a substantial and material difference, so our approach to establishing capacity should reflect that.
The hon. Member for Reigate made an important point about the difference between a passive and an active choice. That very much reflects what I am trying to achieve through the amendment, which would allow us to strengthen the safeguards around the assessment of capacity. Given that there was not a consensus, among the experts who gave evidence, on whether the Mental Capacity Act is sufficient for the purpose, the pragmatic step is to allow the amendment to create the conditions under which a stronger safeguard can be adopted if necessary.
Question put, That the amendment be made.
I totally understand the rationale for having Government Ministers here. It makes me query the whole concept of this being entirely a private Member’s Bill, but I recognise the role of the Government in it. However, if the Government want Ministers present at this Committee, there are Standing Orders that enable Law Officers to attend in their official capacity but not vote. That seems to me to be the appropriate way in which Ministers should be represented here. If they want to speak on the appropriateness of particular measures in terms of Government policy and applicability, that is perfectly appropriate, but I do not understand why they are also voting on this amendment in their capacity as private Members. I wonder whether you can advise me, Sir Roger.
This is a private Member’s Bill. A Bill Committee had to be formed. The Committee was formed in discussions between the Member sponsoring the Bill, the Whips and the House authorities. The principle of formulating the Committee was based in large part on the steer given by the debate and the vote on Second Reading, which delivered a majority of 55 in the House. The numerical composition of this Committee was therefore based on that majority of 55, broadly speaking. My hon. Friend the Member for Spen Valley needed to put together a Committee that reflected that.
The position was also taken that there should be Government Ministers on the Committee who had to speak for the Government with neutrality. It is with those two factors in mind that the Committee was put together. The two functions that my hon. and learned Friend the Member for Finchley and Golders Green and I have reflect the two purposes that were in mind when the Committee was put together.
“, and
(e) is not a prisoner”.
This amendment makes prisoners ineligible for assisted dying.
Amendment 356, in clause 1, page 1, line 12, at end insert
“, and
(e) is not homeless within the meaning of section 175 of the Housing Act 1996 (Homelessness and threatened homelessness).”
Amendment 354, in clause 7, page 4, line 12, at end insert—
“(ea) is not a prisoner,”.
This amendment is consequential on Amendment 353.
Amendment 357, in clause 7, page 4, line 12, at end insert—
“(ea) is not homeless within the meaning of section 175 of the Housing Act 1996 (Homelessness and threatened homelessness).”
This amendment is consequential on Amendment 356.
Amendment 355, in clause 12, page 8, line 9, at end insert—
“(fa) the person is not a prisoner”.
This amendment is consequential on Amendment 353.
Amendment 358, in clause 12, page 8, line 9, at end insert—
“(fa) the person is not homeless within the meaning of section 175 of the Housing Act 1996 (Homelessness and threatened homelessness).”
This amendment is consequential on Amendment 356.
I have had a very privileged life, but for 20 years I have run a charity working in London prisons; I spent about 10 years as full-time chief executive and have spent another 10 years as chairman. I have known hundreds of prisoners and ex-offenders, and I still do. Although I firmly believe in criminal justice—indeed, I think we need to be tougher on certain categories of offender—I recognise from my personal experience the dignity in all prisoners and the absolute necessity of respecting their dignity. In fact, I once wrote a speech for a Conservative leader of yesteryear that made some of those points and got headlined “Hug a hoodie”.
It is no surprise that, with their lives in tatters and feeling completely unable to change anything for the better, so many prisoners self-harm or attempt suicide. Self-harm and suicide are the means to a recovery of agency—not one that we endorse, I am glad to say. Prison staff do everything they can to stop prisoners taking their own lives. The terrible fact is that suicide is the second-leading cause of death in prisons, and self-harm is rife. There are over 40,000 incidents of self-harm in prisons in a single year, which is equivalent to one incident for every two prisoners, according to research by the National Audit Office. A study by the Office for National Statistics found the risk of dying by suicide to be 3.9 times higher among male prisoners than in the general male population.
The case law of our courts and the European Court of Human Rights recognises the special duties of the state to prevent suicide in prisoners. Prisoners are an ageing and highly vulnerable population with less access to good care. The state is responsible for the delivery of healthcare in prisons. Prisoners are wholly in the care of the state. I suggest that, given their vulnerabilities and their dependence on the state, offering assisted dying to prisoners would be fraught with hazard. The risk of things going wrong is just too high.
Amendment 356 relates to people who are homeless. In countries in which assisted dying is legal, there have been significant concerns about homeless people receiving assisted dying. The chief coroner’s report last year in Ontario found that people in insecure housing were disproportionately likely to receive assisted dying. One woman had struggled to find a suitable accommodation for her medical needs, while her suffering worsened through loneliness and isolation. She applied for and received an assisted death.
Advocates of the Bill stress the sacred principle of autonomy, which I respect, but autonomy is not just in the mind. It is in someone’s circumstances; it is determined by the options before them. I challenge colleagues to consider whether someone who is homeless or a prisoner can genuinely be seen as autonomous enough to make a decision of this kind. For someone who is homeless or a prisoner, surely it is doubtful that the choice to go for assisted dying can ever be a fully free one.
I will conclude with a statistic about public opinion in Canada that I find terrifying. In the UK, polling shows that only 6% of British adults think that someone should be eligible for assisted dying if they are homeless. I do not place huge weight on polls about assisted dying, but I cite this one as interesting, because it shows the change that can occur. In Canada, which has had assisted dying for some years now, more than a quarter of people agreed that it should be offered to people who are homeless. Indeed, a quarter believed that it should be allowed for people who are just poor and want it.
I do not believe that there is some enormous difference between the culture of Canada and that of the United Kingdom, but it is significant that people here currently think that it would be wrong to offer assisted dying to people who are homeless, while 10 years after the law was introduced in Canada, a quarter of people there do. That indicates that the law is itself a teacher, which is one of my great concerns about the Bill: that it encourages people to think that the lives of certain categories of citizen are of less value.
I will end with a powerful quote from Fazilet Hadi, who spoke to us representing disabled people. She said:
“This Bill is not an abstract exercise; it will land in a society that is rife with inequality.”––[Official Report, Terminally Ill Adults (End of Life) Public Bill Committee, 29 January 2025; c. 185, Q242.]
She said that the society the Bill will land in is the thing that needs to change, not the Bill. She thinks we need to change our society before we do anything like introducing assisted dying. I agree.
I believe that there are some definitional problems with the amendments, as well as some quite serious moral and ethical problems, and they compound into a practical difficulty. The first definitional one is who exactly my hon. Friend means by “prisoners”. As he knows, not all prisoners are the same. Would he seek to deny assisted dying to prisoners on remand who have yet to be found guilty of a crime but are being held in advance of the criminal justice process? Would he deny assisted dying—which will be available to everybody else if the Bill passes—to people who are held in prison for not paying their council tax, for example, or for contempt of court? There is a variety of vulnerability in the criminal justice system, and prisoners are inside for different lengths of time and in different institutions. Quite a lot of white-collar criminals go to open prisons, for example. Would he seek to deny them?
To me, if my hon. Friend’s objective is to protect vulnerable prisoners, the definition that he is using is far too wide. There are many people who may well find themselves in extremis while they are in prison and are likely to be released at some point, after a short sentence or because of the nature of their sentence, who would therefore have their ability to access assisted dying foreshortened.
Similarly, when my hon. Friend speaks of homeless people and uses the definition in the Housing Act 1996, I think he actually means rough sleepers. The definition of homelessness that he referred to includes people who are staying with friends, people who are moving between homes and people who are likely to become homeless at some point in the future. It is a very wide definition, which covers a large number of people, some of whom would not necessarily be classified as vulnerable and may well be assessed as perfectly capable and have the capacity to make this decision. So my first point is that there is a definitional problem with the broad terms that my hon. Friend has chosen.
On homelessness, yes, we should use the official definition of homelessness, which basically means “in precarious housing”. The purpose of the Bill is to enable people who have full autonomy to make a decision in their own best interest. I think it is legitimate to ask whether people who are living in insecure accommodation, whose lives are in flux, who are experiencing extreme precariousness in their lives, should meet the appropriate criteria for autonomy that we wish to set out.
Turning to my hon. Friend’s point on prisoners, this may come as a surprise to him, but some people who are held on remand are found innocent and are released from prison. During their period on remand, which could be quite lengthy, they would be denied access to something they would not otherwise be denied access to.
Secondly, there is a distinct moral issue about the denial of services, particularly medical services, to groups of individuals based on their circumstances. We do not currently do that. We do not deny medical services to prisoners because they are prisoners. We believe it is a sign of a civilised society that they access the same healthcare as everybody else through our national health service. The same is true of those homeless groups. That includes allowing them to make the kind of decisions that we have talked about in the previous debate: decisions about life-threatening surgery and about the continuation of their life. It is certainly the case, as my hon. Friend will know from his work in prisons, that a number of prisons have developed hospice facilities within the prison to deal with end-of-life issues. Indeed those that do not have hospice care work closely with NHS palliative care outside and very often bring in specialists to deal with end-of-life issues in the prison.
This may seem like a narrow example, but imagine that somebody diagnosed with a progressive disease were to commit a criminal act and end up going to prison, and during their time in prison, they reach the six-month period. Are they to be denied assisted dying if it is available to everybody else in the population? To me, that would not seem morally right, particularly given that we have a duty to deliver, and we do deliver, end-of-life services to them in the prison to help them cope with those circumstances. As my hon. Friend will know, there are charities which provide end-of-life care in prison as well.
There may be people out there who think that prisoners do not deserve it. That would be the flipside of the argument. I understand my hon. Friend is not making it; he wants to protect them because they are vulnerable. To me, however, that seems like a cruel and unusual punishment for people who are already serving time in prison, to whom we should not deny the same health-related services that everybody else receives. I will therefore oppose the amendments.
From a domestic violence point of view, which is why my mother killed an abusive partner, and having been a victim of domestic abuse, I also understand the vulnerabilities concerning women in particular—less so men, although I know the hon. Member for East Wiltshire has done a lot of work on that in his adult life. The majority of women who end up in prison—we have seen this from review of the courts, time and again—are victims of abuse, whether sexual, domestic or another kind. The majority of our women prisoners are in that position.
The suicide rate among the population in England and Wales is 11.4 per 100,000, but for prisoners, that goes up to 108 per 100,000, which is nearly 10 times as high. We also know from research that one third of female prisoners in England and Wales self-harm. We know from the Home Affairs Committee report in the last Parliament on health in the English prison system that standards of health deteriorated in recent years due to budget reduction, loss of prison officers, staff shortages and overcrowding. We know that the Government have had to bring forward early releases, because the prison system is not fit for purpose after the cutbacks of the last 14 years.
All this speaks to me of vulnerability. I hear the points that both the right hon. Member for North West Hampshire and the hon. Member for East Wiltshire have made that, in an ideal world, people should absolutely have equal access to healthcare, but the problem is that we are not in an ideal world. From my perspective, we have a prison system that has had to have emergency interventions since the Labour party came into government, because it is not fit for purpose.
From a healthcare perspective, going back to what Dr Jamilla said and the numerous bits of evidence we heard about health inequalities, I know from a place such as Bradford West that people from ethnic minority backgrounds have less trust in healthcare services. I know that we do not have equity in healthcare services. As a former NHS commissioner, I know that those health inequalities impact on quality of life and that it is a postcode lottery. I am thinking about New Hall women’s prison in Wakefield and Armley prison, which is near Bradford. I am not familiar with London prisons, but I imagine the vulnerability of the women at New Hall. This comes back to the conversation about capacity: by some definition, they might have capacity.
However, we also heard from eminent psychiatrists that when someone has a diagnosis, it impacts on their mental health. In this instance, we are talking about six months, which the right hon. Member for North West Hampshire referred to a number of times. In that six months, access to visitors might not come for another few weeks. A person might not even have a member of their family next to them when they get that diagnosis. They could well be innocent; they could well have been a victim of domestic violence and ended up in prison because they killed an abusive partner after years of abuse.
They could be in a number of situations, but the one thing I concur with is the amount of vulnerability here, in particular for women, which speaks to the issues of capacity and coercion. It speaks to all the things that we are debating here, which is why I support this amendment: it would protect those who are vulnerable. If there was a diagnosis, prison systems would kick in. If someone was given less than six months to live, they would invoke compassionate grounds to leave the prison system, but I would be really uncomfortable seeing anybody in prison being given the option without that comfort.
I cannot imagine being in the position of, say, my mum. I cannot imagine—I would not dare imagine; I do not think I could handle it—the idea of being taken away from my family and being incarcerated, rightfully or wrongfully, guilty or not guilty. I would be in a place, a system and an institution where, depending on which category of prison I was in, the institutional wraparound and the interventions are very different. It depends on the stage of the sentence that somebody is in. If they are in at stage 1 at a category A prison, there are much stricter rules and regulations. Imagine a person being faced with all that and finding out that they have six months to live. As the right hon. Member for North West Hampshire said, there is no guarantee that it is six months—more than 40% of those diagnoses do not turn out to be correct, and they could live longer. What would the impact be on that person? Could they make that decision? From a capacity point of view, I am not sure that that would exist.
We know that prisons have to assess capacity in difficult circumstances. There are prisoners who decide to decline food and water and starve themselves to death. They are assessed as having capacity, if that is not the case, and in certain circumstances they are force fed, if it is seen that they do not have the capacity to take that decision themselves. In fact, the reason why prisons have created hospices within prisons is to deal with exactly such end of life decisions.
If we are doing it for non-assisted dying, why would we deny people the choice and autonomy, having been assessed as capable of making the decision, to do it in prison? Worse than that, if we are going to release them on compassionate grounds, why would we give them a shorter period to access the service than anybody else?
My point is that we do not have equal healthcare access in prison. We provide prisoners with healthcare, but it is in no way equitable. The health inequalities that exist outside prison are bad enough. Palliative care is not fit for purpose in our country—it is a postcode lottery. Depending on which prison someone goes to, that will determine what kind of access they have to palliative care. It is not a level playing field.
“the person has an inevitably progressive illness, disease or medical condition which cannot be reversed by treatment”.
The conditions that my hon. Friend is describing can be reversed by treatment and are not inevitably progressive. We will come to that debate in due course, but that definition is crucial.
“inevitably progressive illness, disease or medical condition”.
To come back to the amendments tabled by the hon. Member for East Wiltshire, the reason why I will support them is that I have way too much experience of people in vulnerable positions, and I have a lifetime of experience of seeing what happens. I do think there are options when somebody has a diagnosis of terminal illness. The prison systems are set up to be able to give them compassionate leave and to explore other avenues. Once they are outside that system, they can access support and have their vulnerability reduced.
We know that people in prison have additional vulnerabilities. We are having a debate about the issue of capacity, which we have clearly not agreed on. A person-centred care package needs to be about supporting the person, removing vulnerabilities, giving autonomy, and offering choices around accessing palliative care and medication, so that they are in a much stronger position to make an informed choice.
We should be applying to prisoners exactly the same criteria of assessment—around capacity, vulnerability and settled will—at the time they are diagnosed with a terminal disease as we do to everybody else, because if we are not going to differentiate among prisoners, in many ways we are dehumanising the entire population. We are saying, “You are all vulnerable—no question—and we are excluding you completely on that basis.” As the hon. Member for Harrogate and Knaresborough said, that is in many ways a fundamental denial of a basic human right.
In the first four weeks we should not have the conversation around assisted death in any case. I have tabled an amendment to that effect and will speak to it when we come to it. In the meantime, a person has an added layer of pressure if they are in prison. It does not mean that everybody is necessarily vulnerable from a starting position. I agree that there may be prisoners who are not vulnerable, but there is an added pressure if somebody is homeless or in prison, not having family or security, that would no doubt compound their mental health. Whether that is a slight or a large impact is for somebody else to assess, but as it is I support the amendment.
With my experience, I can categorically say that that group of people is very vulnerable. As the hon. Member for East Wiltshire said, self-harming and suicidal tendencies are very high among that group. As part of the risk assessments that we carry out in the mental health system, one of the questions is whether they are homeless. That question is asked to identify that vulnerability.
These amendments bring up the importance of a psychosocial assessment, which was highlighted in many pieces of our oral evidence. If we are looking to bring more safeguards into this Bill, that is something we should consider to safeguard this group of people.
I want to make one more point about what the right hon. Member for North West Hampshire said: not all homeless people are homeless in the same way; some people choose to sleep rough. I am not clear whether, if somebody is sleeping rough and is diagnosed with a terminal illness, we are looking to bring them back into an NHS bed to assist them to die. I do not know whether there is a provision to identify how we would manage those sorts of situations.
In fact, the hon. Member may be interested to know that there is quite a lot of on-street mental health assessment taking place for people. People who are living on the street develop all sorts of disorders—indeed, there are often people with quite significant mental health problems on the street—and they are dealt with as closely as possible to the front end.
Therefore, it would not be beyond the capability of the state to make assessments about individuals that are appropriate to the context. I am trying to stress the point that we need to see the person as an individual, as well as within their context. With a blanket ban on particular groups, the human right that I was referring to is denied—it denies them the right to be seen as an individual and assessed as an individual, which is what we do in every other service that we provide to them.
My question was: if somebody who is a rough sleeper is diagnosed with a terminal illness and they want help with assisted dying, will we make provision to bring them back into an NHS bed to facilitate their dying? It would be great to have that clarification. I support the amendment, as I have seen many highly vulnerable people who would be more likely to choose the path to end their life if they were given the option.
Amendment 353 seeks to make prisoners ineligible for assisted dying services even if they meet the definition of having a terminal illness. Amendments 354 and 355 are consequential amendments that would make it a requirement for the co-ordinating doctor in the first assessment and the court process to ascertain whether a person seeking assistance to end their own life is a prisoner.
Aside from the right to liberty, article 5 of the European convention on human rights requires that prisoners should have the same rights as those who are not prisoners. The rights engaged by the amendment are article 8 on the right to respect for private and family life and article 14 on the protection from discrimination. Making prisoners ineligible for assisted dying would, on the face of it, lead to a difference in treatment between prisoners and non-prisoners that would need to be objectively and reasonably justified. The justification test requires that the treatment in question is a proportionate means of achieving a legitimate aim.
Finally, let me address amendments 356, 357 and 358, whose purpose is to exclude those who are homeless within the meaning of section 175 of the Housing Act 1996 from the definition of a “terminally ill person”. The effect of amendment 356 would be to amend the definition of a “terminally ill person”, as set out in clause 1 of the Bill, to expressly exclude a person who, notwithstanding that they met all the other requirements set out in paragraphs (a) to (d) of subsection (1), was homeless within the meaning of section 175 of the Housing Act 1996.
Amendments 357 and 358 seek to make consequential amendments to clause 7 on the first doctor’s assessment and clause 12 on court approval. These amendments would require the co-ordinating doctor and the court to be satisfied that, in their opinion, the person was not homeless within the meaning of section 175 of the Housing Act 1996 before making their statement or declaration to allow the person to proceed to the next stage of the assisted dying process.
Article 14 states that the rights set out in the ECHR should be secured for everyone without discrimination on any ground. This amendment engages article 8 on the right to respect for private and family life. Making those who are homeless ineligible for assisted dying would lead to a difference in treatment that will need to be objectively and reasonably justified. The justification test requires that the treatment in question is a proportionate means of achieving a legitimate aim.
I hope these observations may be helpful to Members in considering these amendments and making a determination about who should be eligible for accessing assisted dying services, should the Bill pass.
I am interested in what the Minister was saying about the ECHR. Notwithstanding my general point about the sovereignty of Parliament, when Lord Sumption gave evidence to the Committee two weeks ago, he stressed the wide margin of appreciation given to member states on the ECHR. Does the Minister think that that will apply in this case to ensure that the British Parliament could vote to exclude these categories of people? If his view is that the Bill could be subject to challenges on discrimination grounds, however, particularly under article 14, I think we will have a lot of problems in applying the Bill. I wonder whether, in due course, we will be able to tease out how the ECHR will intersect with the Bill.
As the Minister says, the crucial point is that any discrimination must be justified on the basis of achieving a legitimate and proportionate aim. My suggestion is that there is an absolutely legitimate aim, and that this is a proportionate means of achieving it.
The debate got quite philosophical, which I found very interesting. I observe that my constituency neighbour, esteemed colleague and great Conservative, my right hon. Friend the Member for North West Hampshire, has a vision of our particular political creed that is entirely individualistic. He stresses the absolute importance of individual autonomy, treating everybody as an individual without reference to the context in which they live. I suggest to him, and to the Committee, that our freedom and autonomy depend on our relationships. Our autonomy proceeds from our socialisation. We do not emerge fully formed into the world with all our values and attributes; we acquire them by virtue of the people around us.
The crucial thing about the prison experience is that it disrupts the relationships that can make an individual genuinely free. Homelessness does likewise, and it sets up all sorts of new relationships and new socialisations that can often be very negative.
What I was trying to communicate to my hon. Friend and his supporters in respect of this amendment is that I think it profoundly wrong to paint all prisoners with the same brush and see them as a homogeneous whole, rather than seeing them for the individuals they are, specifically when they are taking a very individual, personal and private decision about their own life and death.
To descend from the abstract, let us consider an actual case, albeit a hypothetical one. Someone is in prison. They have committed some crime, or they have not committed a crime but have been remanded. Their whole family life has been smashed to pieces over the years, or just recently. They then get the terrible diagnosis of a terminal illness. A doctor says to them, because they are allowed to do so under the Bill, “You know, one of your options is an assisted death.” I think that that would be incredibly influential, to the point of serious concern, for those of us who know how vulnerable people in prison are. The same applies to people living on the streets, the people my right hon. Friend was describing.
My right hon. Friend the Member for North West Hampshire talks about the need to assess each case on its own merits, individually. I recognise that, and in principle of course that is what we should be doing. Nevertheless, that assumes that the safeguards in the Bill are adequate to the challenge of dealing with people in such particularly vulnerable circumstances. I am concerned that they are not adequate anyway. I believe very strongly that they are not appropriate to people in these circumstances and that therefore it is appropriate to have what he calls a blanket ban.
As I said in an intervention earlier, we have to treat particular classes of people in the same way. We do that all the time, with respect specifically to the prison population. The fact is that we have to draw the line somewhere. We are drawing the line in all sorts of places in this Bill—around the age limit and around diagnosis and prognosis. I think it would be very appropriate, given the extreme vulnerability of these populations, to draw it around them and protect them from the vulnerabilities and dangers that I think all Members recognise might apply in certain circumstances. They will apply in heightened likelihood to these populations.
I do not propose to press these amendments to a vote, but I am grateful to hon. Members for the points that they have made, and I hope that the concerns have been noted. I beg to ask leave to withdraw the amendment.
Amendment, by leave, withdrawn.
Amendment made: 179, in clause 1, page 1, line 13, after “provided” insert “in England or Wales”.—(Kim Leadbeater.)
This amendment limits the assistance that may be provided in accordance with the Bill to assistance in England or Wales.
This amendment reflects the changes in Amendments 110 to 112 that change the requirement from having to establish that a person who wishes to end their own life under the Act has clear, settled and informed wish, to a clear, settled and demonstrably informed wish.
Amendment 110, in clause 7, page 4, line 13, after “and” insert “demonstrably”.
This amendment requires the coordinating doctor to ascertain whether, in their opinion, the person has a “demonstrably” informed wish to end their own life.
Amendment 111, in clause 8, page 4, line 36, after “and” insert “demonstrably”.
This amendment requires the independent doctor to ascertain whether, in their opinion, the person has a “demonstrably” informed wish to end their own life.
Amendment 112, in clause 9, page 6, line 13, at end insert—
“(da) be satisfied that, in their opinion, the person has demonstrated their understanding of the matters in subsections (2)(b) to (2)(d).”
This amendment requires the assessing doctor to be satisfied that, in their opinion, the person has demonstrated their understanding of the matters that have to be discussed and the information provided under subsections (2)(b) to (2)(d).
My view is that those declarations, as well as the assessment that the doctor has to go through to confirm that the person has a settled wish to do this, are enough to show that the person demonstrably wants to access the service for themselves. I am concerned that amendment 109, like other amendments that we will debate later, would insert into the Bill a series of individual words that will unnecessarily complicate its contemplation by doctors. We heard in evidence that for the Bill to work, it needs to be simple and understandable by everybody who is dealing with it. The more we can minimise the number of words that may be open to interpretation by lawyers —and we certainly have plenty of lawyers in the room— the better. From that point of view, I will oppose the amendment. I understand what the hon. Lady is trying to achieve, but I believe that we have achieved it by different means.
Amendments 109, 110 and 111 would modify the requirement that the co-ordinating doctor and the independent doctor must undertake an assessment to ascertain whether, in their opinion, the person has a clear, settled and informed wish to end their own life. That would be amended to require the person to have a clear, settled and demonstrably informed wish. The term “demonstrably” would not provide further practical guidance beyond the words already in the Bill and could create uncertainty as to what constitutes being demonstrably informed.
I turn to amendment 112. Clause 9 currently provides that the co-ordinating and independent doctors must explain and discuss a number of matters with the person being assessed. These matters are set out in clause 9(2)(b), (c) and (d). In the interests of time, I will not go through each of those matters, but they include an explanation and discussion of the person’s diagnosis and prognosis, any treatment available and the likely effect of it, and the further steps that must be taken before assistance can lawfully be provided to the person under the Act.
The amendment would create an additional requirement for the co-ordinating and independent doctors. It would require them both to be satisfied that, in their opinion, the person seeking assistance has demonstrated their understanding of the matters that have been discussed under clause 9(2)(b), (c) and (d). The amendment does not specify in any further detail what the doctors would be required to look for to satisfy themselves that a person has demonstrated their understanding. That would be left to their professional judgment, with training, support and guidance, as with other concepts in the Bill. The amendment would leave it to the co-ordinating and independent doctor’s professional judgment to determine what “demonstrated their understanding” looked like in respect of each individual person.
I hope that those observations are helpful to the Committee.
To make a gentle criticism, I think that there is a concern about the lack, throughout the Bill, of a proper trail of documentary evidence following the applicant through the process. For example, the two conversations with the doctor would take place behind closed doors, and no record of their discussion would be made. I do not think that conducive to trust. There is no way to assess whether the safeguards are actually in operation.
Likewise, I am glad to say that the opportunity remains for a legal appeal, in so far as we still have a judicial process, but I am concerned that the lack of any documentary evidence makes the application difficult for any external party or the Court of Appeal to review. Currently, there is a great paucity of information that the High Court judge considering the application can request. I think it is important that the High Court judge—or, indeed, the panel, if we move to that approach—should have access to a much fuller range of documentation to ensure that the process has been properly followed.
I will finish on a point about the role of the Court of Appeal. A rejected application—although not an approved application, I am sorry to say—can be appealed under clause 12. For the Court of Appeal’s review to be substantive, it must surely be able to review the evidence as fully as possible on what happened throughout the terminally ill person’s application.
Amendment, by leave, withdrawn.
Ordered, That further consideration be now adjourned. —(Bambos Charalambous.)
TIAB 109(a) Complex Life and Death Decisions Group, King’s College London (supplementary)
TIAB 110 Royal College of Nursing (supplementary)
TIAB 111 CARE (Christian Action Research and Education)
TIAB 112 Letter from Sarah Olney MP to Alex Ruck Keene KC (Hon) and subsequent follow-up response
TIAB 113 Professor Colin Rees
TIAB 114 Association for Palliative Medicine of Great Britain and Ireland (supplementary)
TIAB 115 Scottish Christian Forum on Assisted Dying
TIAB 116 St Christopher’s Hospice
TIAB 117 Medical Defence Union
TIAB 118 Dr Liam Gabb, King’s College London
TIAB 119 Dr Alex Hughes, King’s College Hospital
TIAB 120 Dr Anna Folwell
TIAB 121 Rev. Canon G. Roger Harper-Allen
TIAB 122 Dr Kevin De Sabbata, Professor Anthony Wrigley, Dr Abigail Pearson, Dr Dunja Begović and Dr Sotirios Santatzoglou (Keele University)
TIAB 123 Diana L. Barnard, MD
TIAB 124 Professor Julian C. Hughes
TIAB 125 Professor David Paton, Nottingham University Business School
TIAB 126 Sue Ryder
TIAB 127 Kennedys
TIAB 128 Pro-Life Victoria
TIAB 129 Professor Derick T. Wade
TIAB 130 Dr Leonie Herx, Dr Harvey Chochinov, Dr Ramona Coelho, Dr Catherine Ferrier and Dr Ebru Kaya
TIAB 131 Chelsea Roff, Catherine P. Cook-Cottone PhD and Agnes Ayton MD FRCPsych (supplementary)
TIAB 132 Charles Warlow FRSE, Emeritus Professor of Medical Neurology, University of Edinburgh
TIAB 133 Dr Jess Kaan (supplementary)
TIAB 134 Rowcroft Hospice
TIAB 135 Dr John E. T. Pillinger MB ChB MA
TIAB 136 Dr Sarah Davies
TIAB 137 Dr Tom Pembroke and Dr Clea Atkinson
TIAB 138 Dr Carl Counsell, Clinical Reader and Honorary Consultant Neurologist
TIAB 139 Dr Stephen Dyer
TIAB 140 Dr Paul Shaw
TIAB 141 James Catmur
TIAB 142 Dr Matthew Doré
TIAB 143 Dr Christopher Ohlsen
TIAB 144 Margaret Flynn, Chair, National Mental Capacity Forum
TIAB 145 Dr Michael Dobson
TIAB 146 Dr Chris Ainsworth
TIAB 147 Professor Dominic Wilkinson
TIAB 148 Iain Brassington, Professor of Applied and Legal Philosophy, CSEP/Law, University of Manchester
TIAB 149 Professor Bill Noble
TIAB 150 Frances Levett
TIAB 151 Dr Jennifer Bryden MBChB (Hons) BSc (Hons) MRCPsych
TIAB 152 Colin Myerscough
TIAB 153 Dr Jennifer Klimiuk
TIAB 154 Dr John Barker
TIAB 155 Dr Toni Saad
TIAB 156 Friends at the End
TIAB 157 Andrew Bunting
TIAB 158 Pauline Carroll
TIAB 159 Joanne Parkes
TIAB 160 Stephen Foster
TIAB 161 Ruth Hughes
TIAB 162 Mary Warrell
TIAB 163 Dr Julie Barker
TIAB 164 Dr Elizabeth (Lily) Lamb
TIAB 165 Dr Christopher Lyon
TIAB 166 Anne Dickinson
TIAB 167 Professor Lorna Fraser, Professor of Palliative Care and Child Health based at King’s College London
TIAB 168 National Down Syndrome Policy Group
TIAB 168(a) Further written evidence submitted by the National Down Syndrome Policy Group: open letter from 60 regional and national organisations in the UK expressing opposition to the proposed Assisted Dying Bill. This letter outlines various concerns pertaining to the Bill, focusing particularly on its impact on individuals with Down syndrome and learning disabilities.
TIAB 169 Dr Edward Tulloch
TIAB 170 José María Trejo Gabriel y Galán
TIAB 171 Doctor and pharmacist concerns from the Shetland and Orkney Islands
TIAB 172 Dr Catherine Day MBChB FRCGP
TIAB 173 Robin Thomson
TIAB 174 Professor Dame Lesley Fallowfield
TIAB 175 Dr Adele Pilkington
TIAB 176 Christine Kelly
TIAB 177 Miguel Hayworth
TIAB 178 Free Church of Scotland
TIAB 179 Coptic Medical Society UK
TIAB 180 Catholic Medical Association (UK)
TIAB 181 An individual who wishes to remain anonymous
TIAB 182 Dr Janet Menage MA MB ChB, GP (retired)
TIAB 183 An individual who wishes to remain anonymous
TIAB 184 Catholic Bishops’ Conference of Scotland
TIAB 185 Steven Bow FFPH, Consultant in Public Health
TIAB 186 Dr Kazumi Chia
TIAB 187 Dr Keith Williams
TIAB 188 Graham Charkham
TIAB 189 Down Syndrome Research Foundation UK
TIAB 190 Dr Isra Black, UCL Faculty of Laws
TIAB 191 Dr Janet Reiss
TIAB 192 Written evidence submitted on behalf of the main healthcare chaplaincy bodies in the UK
TIAB 193 National Down Syndrome Policy Group
TIAB 194 Dr Christopher Wayte
TIAB 195 Anthony Michael Brooks
TIAB 196 Graham Brack
TIAB 197 David Cahill
TIAB 198 John Allen FRCS
TIAB 199 Dr Gregory K. Pike
TIAB 200 Dr Mark Gilmour
TIAB 201 John Barrett
TIAB 202 Dave Sowry
TIAB 203 Dr Sarah Grove, Consultant in Palliative Medicine
TIAB 204 Professor Mark Taubert
TIAB 205 Dr Livia Tossici-Bolt
TIAB 206 Dr Alastair Brown, Dr Pauline Brown
TIAB 207 E. M. Wojciechowska
TIAB 208 Dr Siwan Seaman
TIAB 209 Dr Sarah Hooper
TIAB 210 Douglas Roberts
TIAB 211 Margaret McCartney
TIAB 212 Dr Catherine Lobb
TIAB 213 Dr James Haslam
TIAB 214 Rev. Richard Blyth
TIAB 215 Heritage Party
TIAB 216 Dr Rachel Quibell, Consultant in Palliative Medicine
TIAB 217 Dr Kathryn Mannix FRCP, Consultant in Palliative Medicine (retired), Campaigner and Medical Writer
TIAB 218 Evangelical Alliance
TIAB 219 Dr Susan Bowie
TIAB 220 Alicia Duncan
TIAB 221 John Etherton
TIAB 222 Matthew Gillman
TIAB 223 Alexander Elphinston
TIAB 224 Dr Rees Johnson
TIAB 225 Dr Rebecca Jones
TIAB 226 UK Deaf and Disabled People’s Organisations’ Monitoring Coalition
TIAB 227 Stephen Twist
TIAB 228 Rosie Clark, a registered nurse
TIAB 229 Bernard Palmer
TIAB 230 Professor Jane L. Hutton
TIAB 231 Colin Wilson, Director, Social Philosophy Analysis
TIAB 232 Emeritus Professor Stephen Hodkinson
TIAB 233 Dr A. C. Hinchliffe
TIAB 234 Dr Jennifer Hardes Dvorak
TIAB 235 Dr Paul Shaw FRCP FRCR PhD
TIAB 236 Anne Iliff MBChB MRCGP
TIAB 237 Dr Cameron McClaren (supplementary)
TIAB 238 Steven Miles MP, Queensland Leader of the Opposition
TIAB 239 All-Party Parliamentary Group on Down Syndrome
TIAB 240 Peter Tan DM FRCS
TIAB 241 Dr Jacinta Tan
TIAB 242 Ann-Marie Chinnery
TIAB 243 Dr C. M. Valinejad AFBPsS, Consultant Clinical Psychologist, Director, Salus Psychological Services Ltd
TIAB 244 Dr Tim Platts
TIAB 245 Hon. Robert Clark, a former Attorney-General and MP in Victoria, Australia
TIAB 245(a) Hon. Robert Clark, a former Attorney-General and MP in Victoria, Australia (further submission)
TIAB 246 Debra Keogh
TIAB 247 Dr Victoria J. Wheatley, Palliative Medicine Consultant, Wales
TIAB 248 Richard Scheffer
TIAB 249 Joint submission from Dr Simon Noah Etkind, Professor Scott Murray, Dr Annabel Price and Dr Sarah Hopkins
TIAB 250 Dr Maggie Spence
TIAB 251 Dr Trevor Stammers FRCGP
TIAB 252 Dr Jamilla Hussain (Supplementary)
TIAB 253 Dr Steve Brennan
TIAB 254 Dr David Ian Jeffrey
TIAB 255 Máire Stapleton MRPharmS MSc Clin Pharm, plus 16
TIAB 256 Judith Coleman
TIAB 257 Kevin Woodhouse
TIAB 258 Professor David Albert Jones
TIAB 259 Dr Mark Wareing
TIAB 260 Dr D. P. Whitehouse
TIAB 261 Dr Philip Howard
TIAB 262 Naomi Clarke
TIAB 263 Ian Watt
TIAB 264 Dr George L. Chalmers MB FRCPEd FRCP
TIAB 265 Dr Kathryn Myers
TIAB 266 Dr Agnes Ayton
TIAB 267 St Joseph and St Etheldreda, Rugeley, Staffordshire, parish conference of the St Vincent de Paul Society
TIAB 268 Barry Gleeson
TIAB 269 Simon Davies
TIAB 270 Dr Vicki Ibbett
TIAB 271 Dr Rosemarie Anthony-Pillai
TIAB 272 Dr Pui Shan Emma Mason BSc (Hons) FRCP MAcadMEd
TIAB 273 Anna Bossong
TIAB 274 An individual who wishes to remain anonymous
TIAB 275 Dr Tara Watson
TIAB 276 St John’s Hospice, Lancaster
TIAB 277 Dr Grace Bull
TIAB 278 Hon. Dr Sally Talbot MLC, Member for South West Region, Parliament of Western Australia
TIAB 279 Dr Virginia Goncalves MBBS MRCPsych, Consultant Psychiatrist (Retired)
TIAB 280 Dr Claire Stark Toller, Dr Mark Banting, Dr Charlie Besley, Dr Rebecca Allan, Dr Hannah Rose and Dr Sophie Jones
TIAB 281 Dr Mark Lee MB ChB MRCP MD
TIAB 282 Simon Henesey
TIAB 283 Ms Lynne Leeder
TIAB 284 David R Grube MD
TIAB 285 National Bereavement Alliance and Childhood Bereavement Network
TIAB 286 James David Young MB ChB
TIAB 287 Professor Michael Dooley, Director of Victorian Voluntary Assisted Dying Service
TIAB 288 Dr Brian Hopkins BM MRCGP DCH DRCOG
TIAB 289 Dr Kenneth Wong MA FHEA, FESC, FACC
TIAB 290 Elijah Granet
TIAB 291 Palliative Medicine Resident Doctors
TIAB 292 Elizabeth Edmunds
TIAB 293 Dr Melody Grace Redman BSc (Hons) MBBS PGCert HPE PGCert ClinRes PGCert
TIAB 295 Dr Hannah Reynolds MBChB BSc MRCPsych
TIAB 296 Dr Francis H. Sansbury
TIAB 297 Chloe Anderson
TIAB 298 Professor Hugo van Woerden MBChB MPH PhD FFPH
TIAB 299 Kate Heaps RGN DN BSc MSc DL
TIAB 300 Thomas Maxwell-Aylwin
TIAB 301 Dignity in Dying
TIAB 302 Dr Wendy Dyke
TIAB 303 Professor Ian Kunkler FRCPE FRCR, Retired NHS Consultant in Clinical Oncology, Edinburgh, Honorary Professor of Clinical Oncology, University of Edinburgh
TIAB 304 VISION consortium
TIAB 305 His Honour Judge Robert Martin
TIAB 306 Mrs Catherine Ashenfelter
TIAB 307 Dr Philip Murray, Fellow, Director of Studies in Law and Tutor, Robinson College, Cambridge, Affiliated Lecturer, Faculty of Law, University of Cambridge
TIAB 308 Dr Christine Murray MBBS (London), MRCS, LRCP, FRCPsych
TIAB 309 Luis Espericueta, Researcher and lecturer in bioethics at the University of Granada, Spain
TIAB 310 Professor Emily Jackson FBA OBE, Law School, The London School of Economics and Political Science
TIAB 311 Dr Tim Howard
TIAB 312 Alyx Rigney
TIAB 313 David and Vivien Child
TIAB 314 Written evidence submitted by a group of general practitioners who work in a large practice in Derbyshire
TIAB 315 Dr Chris Paxton
TIAB 316 Julia Sanderson
TIAB 317 David Foletta, an Australian lawyer
TIAB 318 Dr Helen Corcoran
TIAB 319 Hon. Michael Gaffney MLC, Independent Member for Mersey Legislative Council, Australia
TIAB 320 Dr Nicholas Herodotou, Palliative Medicine Consultant, Honorary Clinical Lecturer, UCLMS, Bedfordshire Hospitals NHS Foundation Trust
TIAB 321 British Geriatrics Society
TIAB 322 Humanist Society Scotland
TIAB 323 Dr Ariel Dempsey MD, DPhil candidate, University of Oxford
TIAB 324 Sir David Haslam CBE
TIAB 325 Mrs Patricia Cook
TIAB 326 Dr Jonathan Buckley
TIAB 327 An individual who wishes to remain anonymous
TIAB 328 Dr Elizabeth Davis
TIAB 329 Dr Robin Arnold
TIAB 330 Dr Katie Jerram, Specialist Grade Doctor, Palliative Medicine
TIAB 331 Dr Michael J Scott MSc PhD
TIAB 332 Heather J. McClure
TIAB 333 John Seymour
TIAB 334 Professor Lucy E. Selman
TIAB 335 Professor Ben Colburn, Professor of Political Philosophy, University of Glasgow
TIAB 336 Regard (the national LGBTQI+ disabled people’s organisation)
TIAB 337 Professor David G. Smithard
TIAB 338 Dr Suzanne Wong
TIAB 339 Victoria Brignall, former Chair of Action on Disability
TIAB 340 Evelyn Rowland
TIAB 341 Dr Mary Neal, Reader in Law, University of Strathclyde
TIAB 342 Dr David Cameron MB ChB
TIAB 343 Simon Dixon
TIAB 344 Dr Kelly Roberts
TIAB 345 Adrian and Patricia Cox
TIAB 346 Janet Williams
TIAB 347 Dr Nicholas Herodotou BSc MBBS DGM DRCOG DPM MRCGP FRCP FHEA
TIAB 348 Sara J. Barrington
TIAB 349 An individual who wishes to remain anonymous
TIAB 350 Lois Williams
TIAB 351 Rev. Martin Cawley
TIAB 352 Dr Anulika Igboaka
TIAB 353 Dr Timothy Trussell MPharm BMBS PGDip DCH MRCGP
TIAB 354 Claire McLachlan
TIAB 355 Dr David Nicholl
TIAB 356 Simon Henesey
Contains Parliamentary information licensed under the Open Parliament Licence v3.0.